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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Sunday, October 20, 2019

TMAU Meeting with Prof Liz Shephard

MEBO's Karen was at the TMAU meeting with Prof Liz Shephard in London on 19Oct 2019.

Update : See this post for the official final summary   

Here is Karen's summary of the meeting
Meeting/Discussion Group with
Dr, Azara Janmohamed
and Professors Elizabeth A. Shephard,
and Ian R. Phillips
on 19.10.19. at St Mary’s Hospital.

We discussed:

Update :
The post has been removed for now while clarification is made as to Prof Shephard's willingness for what is made public about the meeting.

The post should be updated around Wednesday.

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A EURORDIS and NORD Member Organization

4 comments:

Anonymous said...

After all these years I dont understand why their isn’t better treatment options laid out on the table. This condition is destroying people’s llives, people I hear and talk to daily are contemplating suicide as the only way out. There has to be better treatments that’s not being discussed at this time. People are suffering in silence and no one seems to care because it’s not life threatening, but so many people wants to end thei lives because of it...We definitely need help, and we need it fast.

Oct 21, 2019, 11:46:00 AM
Anonymous said...

I have been taking resveratrol from Mega Resveratrol after trying everything else. Recently Dermetel, a student organization in the United States, offered pure DMB for sale on Amazon. I thought, if DMB is available to them, why not see if Mega Resveratrol could add extra DMB to some of its product, and offer it for sale to TMAU sufferers? (They have already offered resveratrol enhancers, so they might be interested in this.)

Other potentially interested companies might be Yerba Buena, producers of Odor Cleanse, and Dermetel, who might want to try again. I think they found that pure DMB is too volatile to be sent by mail, but perhaps if it is mixed with pure resveratrol, it would be acceptable to the post office.

This would be an avenue to pursue, wouldn't it?

Oct 25, 2019, 2:53:00 AM
Anonymous said...

Still no update yet ?

Oct 29, 2019, 4:52:00 PM
blogcontributor2 said...

A new update post will be done.
It will be an approved version of the update.
Also, new news ... they have applied for a grant from the trust, but it probably won't be until February until the request is reviewed.

Oct 29, 2019, 8:01:00 PM
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