MEBO's Karen was at the TMAU meeting with Prof Liz Shephard in London on 19Oct 2019.
Here is Karen's summary of the meeting
Meeting/Discussion Group with
Dr, Azara Janmohamed
and Professors Elizabeth A. Shephard,
and Ian R. Phillips
on 19.10.19. at St Mary’s Hospital.
We discussed:
Update :
The post has been removed for now while clarification is made as to Prof Shephard's willingness for what is made public about the meeting.
The post should be updated around Wednesday.
Update : See this post for the official final summary
Meeting/Discussion Group withDr, Azara Janmohamed
and Professors Elizabeth A. Shephard,
and Ian R. Phillips
on 19.10.19. at St Mary’s Hospital.
We discussed:
Update :
The post has been removed for now while clarification is made as to Prof Shephard's willingness for what is made public about the meeting.
The post should be updated around Wednesday.
![[Facebook Share]](https://lh3.googleusercontent.com/blogger_img_proxy/ABLy4EydR6ezHwmG42Hgadfj2bmspZlJd9_8rubDasVgozkn0B0zdc7YhaTmf4SI23Qff1dUyM4GplazPejqjJncfnkdyrpvSNs=s0-d){kind=small}
UK 
Spain 
4 comments:
After all these years I dont understand why their isn’t better treatment options laid out on the table. This condition is destroying people’s llives, people I hear and talk to daily are contemplating suicide as the only way out. There has to be better treatments that’s not being discussed at this time. People are suffering in silence and no one seems to care because it’s not life threatening, but so many people wants to end thei lives because of it...We definitely need help, and we need it fast.
I have been taking resveratrol from Mega Resveratrol after trying everything else. Recently Dermetel, a student organization in the United States, offered pure DMB for sale on Amazon. I thought, if DMB is available to them, why not see if Mega Resveratrol could add extra DMB to some of its product, and offer it for sale to TMAU sufferers? (They have already offered resveratrol enhancers, so they might be interested in this.)
Other potentially interested companies might be Yerba Buena, producers of Odor Cleanse, and Dermetel, who might want to try again. I think they found that pure DMB is too volatile to be sent by mail, but perhaps if it is mixed with pure resveratrol, it would be acceptable to the post office.
This would be an avenue to pursue, wouldn't it?
Still no update yet ?
A new update post will be done.
It will be an approved version of the update.
Also, new news ... they have applied for a grant from the trust, but it probably won't be until February until the request is reviewed.