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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Friday, December 27, 2019

Ubiome MEBO study : Irene posts an update

Professor Irene Gabashvili, long-time MEBO helper and founder of Aurametrix, has written another update about the UBIOME-MEBO microbiome research study, which Irene oversaw.

Here are the 2 latest updates on Irene's Aurametrix blog.   

About the Ubiome-MEBO study
Ubiome kindly gave MEBO a grant in the form of free microbiome testing kits to test our community. Analysis of the results is still ongoing by Irene. 

Ubiome closed this year
Unfortunately Ubiome closed this year after venturing into the USA 'Dr-order' market. Originally it was only a 'consumer market' test. An issue arose with the FDA over its billing practices.
Forbes article

Ubiome alternatives ?
Some say Viome is a similar test to Ubiome's. Some say it includes testing for TMA (this is likely an estimate from guessing which bacteria produce TMA). Nothing can be suggested with total confidence in the blog. Probably forum posters will know more.

Ubiome patents bought recently
It seems Psomagen bought the Ubiome patents this month.
news : Patents bought 

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A EURORDIS and NORD Member Organization


Anonymous said...

Can you guys please look into Chan Zuckerberg Initiative.
They support rare diseases so maybe they might give us a grant?

Jan 2, 2020, 10:36:00 AM
Anonymous said...

Jan 2, 2020, 10:37:00 AM
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