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MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Friday, December 27, 2019

Ubiome MEBO study : Irene posts an update

Professor Irene Gabashvili, long-time MEBO helper and founder of Aurametrix, has written another update about the UBIOME-MEBO microbiome research study, which Irene oversaw.

Here are the 2 latest updates on Irene's Aurametrix blog.   



About the Ubiome-MEBO study
Ubiome kindly gave MEBO a grant in the form of free microbiome testing kits to test our community. Analysis of the results is still ongoing by Irene. 

Ubiome closed this year
Unfortunately Ubiome closed this year after venturing into the USA 'Dr-order' market. Originally it was only a 'consumer market' test. An issue arose with the FDA over its billing practices.
Forbes article

Ubiome alternatives ?
Some say Viome is a similar test to Ubiome's. Some say it includes testing for TMA (this is likely an estimate from guessing which bacteria produce TMA). Nothing can be suggested with total confidence in the blog. Probably forum posters will know more.

Ubiome patents bought recently
It seems Psomagen bought the Ubiome patents this month.
news : Patents bought 
Psomagen     

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A EURORDIS and NORD Member Organization

2 comments:

Anonymous said...

Can you guys please look into Chan Zuckerberg Initiative.
They support rare diseases so maybe they might give us a grant?

https://chanzuckerberg.com/science/programs-resources/rareasone/

Jan 2, 2020, 10:36:00 AM
Anonymous said...

https://chanzuckerberg.com/grants-ventures/

Jan 2, 2020, 10:37:00 AM
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