Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Friday, December 27, 2019

Ubiome MEBO study : Irene posts an update

Professor Irene Gabashvili, long-time MEBO helper and founder of Aurametrix, has written another update about the UBIOME-MEBO microbiome research study, which Irene oversaw.

Here are the 2 latest updates on Irene's Aurametrix blog.   

About the Ubiome-MEBO study
Ubiome kindly gave MEBO a grant in the form of free microbiome testing kits to test our community. Analysis of the results is still ongoing by Irene. 

Ubiome closed this year
Unfortunately Ubiome closed this year after venturing into the USA 'Dr-order' market. Originally it was only a 'consumer market' test. An issue arose with the FDA over its billing practices.
Forbes article

Ubiome alternatives ?
Some say Viome is a similar test to Ubiome's. Some say it includes testing for TMA (this is likely an estimate from guessing which bacteria produce TMA). Nothing can be suggested with total confidence in the blog. Probably forum posters will know more.

Ubiome patents bought recently
It seems Psomagen bought the Ubiome patents this month.
news : Patents bought 

get New Posts by EMAIL : Enter your email address :

A EURORDIS and NORD Member Organization


Anonymous said...

Can you guys please look into Chan Zuckerberg Initiative.
They support rare diseases so maybe they might give us a grant?

Jan 2, 2020, 10:36:00 AM
Anonymous said...

Jan 2, 2020, 10:37:00 AM
Post a Comment