TMAU/MEBO on Medics4RareDiseases twitter

Medics 4 Rare Disease is a small UK charity aiming to inform medic students about rare disorders.

On social media they have a 'Mystery Disease Monday' awareness campaign.

This week it was TRIMETHYLAMINURIA.

Thanks to Daniel who co-ordinated today's campaign with M4RD.

You can learn about trimethylaminuria by watching this short video of Karen James from @meboresearch
at the @findacure Drug Repurposing Conference earlier this year. TMAU is an invisible and stigmatised illness - Karen's talk was really enlightening https://t.co/yyRk3PmiAb

— Medics4RareDiseases (@M4RareDiseases) September 14, 2020

Today with #MysteryDiseaseMonday we have been raising awareness of an invisible illness called trimethylaminuria. Thank you to @meboresearch for helping us with this. Learn more at https://t.co/IXUJtZlAS2 #daretothinkrare pic.twitter.com/ARJ6Ungyf1

— Medics4RareDiseases (@M4RareDiseases) September 14, 2020

It's #MysteryDiseaseMonday 🦓🙌 Have you heard of TRIMETHYLAMINURIA? Go to Medics4RareDiseases insta story to take the poll Thank you to @MeBOResearch @findacure_fdn for bringing this condition to our attention! #DareToThinkRare #InvisibleIllness pic.twitter.com/jOZMZrI8kF

— Medics4RareDiseases (@M4RareDiseases) September 14, 2020

M4RD MISSION

We are driving an attitude change towards rare diseases amongst medical students and doctors in training.

With over 7000 rare diseases, it’s impossible to know about all of them. However it is possible for doctors to:

Appreciate that rare diseases are collectively common

Recognise the exceptional challenges faced by patients with rare diseases

M4RD provides education in the Rare Disease field for medical students and doctors in training. Our ultimate aim is to improve the patient-doctor relationship and speed up the journey to diagnosis.

Media4RareDiseases website

Daniel's youtube channel  

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