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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Tuesday, June 22, 2021

Preliminary 1 week results COVID-19 BTN Study

Preliminary results from the
COVID-19 Back-to-Normal research study

REGISTERED IN CLINICALTRIALS.GOV
Survey in English
eConsent in English
Survey en español
Conentimiento electrónico en español

See above-noted documents for privacy commitments

One week after MEBO launched this study, our MEBO Scientific Director and Founder of Aurametrix, Irene Gabashvili, PhD, writes her first post in her Aurametrix Blog about the preliminary results based on the responses to the survey of the 24 member of the MEBO community and 6 of their family members from various countries around the world. The responses refers to reactions to the Astrazeneca, J&J, Moderna, Pfizer and Sinovac/Coronavac vaccines, documenting the reactions sufferers of breath and body odor have experienced.

Urine and axillary odor are becoming slightly more aversive in healthy humans, as a function of immune activation. But this is not supposed to last too long… Interestingly, Pfizer vaccine that caused no or very mild reactions in several MEBO participants, was also the vaccine that possibly caused temporary worsening of odor symptoms in one person in the community. Another MEBO participant that reported possible worsening of odor from Moderna vaccine had one thing in common with the other individual - they both had pre-existing conditions related to their upper digestive tract. Some Astrazeneca recipients also reported odor issues but did not think it was worse than usual…We'll be posting more observations and comparisons with over 600 participants of our study from other communities.
I [Irene] have a lot of data now on bad adverse reactions to vaccines, so I can answer any questions to those who are still hesitant.
These are just very preliminary results, of course, only one week into the study, and the goal is to ultimately compare them to other communities of persons who do not suffer from odor conditions to determine whether there may be any significant differences.

Irene requests the following from us:
  1. It would be interesting to know if we had more cases of (possible) COVID infections in the group.
  2. We can accept people's stories as e-mails or PMs to maria.delatorre@meboresearch.org or irene.gabashvili@meboresearch.org
  3. .
  4. It's OK to skip some questions in the survey.
  5. Even if you were never vaccinated, you are welcome to share your observations about COVID infections or how they avoided COVID.

Message to our community from Irene:
I have a lot of data now on bad adverse reactions to vaccines, so I can answer any questions to those who are still hesitant. irene.gabashvili@meboresearch.org. I mean, I agree that some people should be very careful about vaccination as certain pre-existing conditions could cause really bad reactions. Even more so if infected. It's better to know what to expect and to be prepared.
Thank you, Irene for all you do for us on a pro-bono basis. Your dedication to our MEBO community around the world is greatly appreciated beyond words!

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.meboafrica.org
www.meboresearch.co.uk
MEBO's Blog (English)
El Blog de MEBO (español)


A EURORDIS and NORD Member Organization

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