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Wednesday, October 15, 2008

A word of admiration from Maria to this great Community


WORKING TOGETHER, FISHING FOR ANSWERS

It amazes me how very driven this community is to find a cure. We have realized that this is probably the only real beam of hope we see that may lead us to a cure, and thus we somehow manage to muster up from who knows where energy and time. We have been screaming so much in the dark lost with no direction and with no hope for much too long. Now, we actually have a plan - a good one at that. It may just work... WE'RE NOT USED TO HAVING TANGIBLE HOPE, ARE WE???

I can appreciate that Arun, Ben, Richard, and my lady friend in the UK, and so many others are so very busy with their jobs, school, and medical conditions, and yet they are making time for the final stages of the anthology, such as the paintings, writing a preface, and the publishing process; making time for establishing a charity corporation in the UK with affiliations in the US and Australia; for arranging meet-up sites, and to help others write a cookbook and to post in our blogs, etc. – and the list goes on and on.

I know that we may be feeling stressed, perhaps even some anxiety, as we see this process shift from fantasy to reality. We are taking steps - one step at a time, and are carrying out a real action plan that is unfolding before our very eyes, and we are witnessing an organized effort from people throughout the world in this endeavor! We all know that as this phase is completed, we will then only be face with the new challenges of actually carrying out the fundraising projects throughout the world, no less. And we will persevere! As the saying goes, "Bravery is not the absence of fear, but what we do in the face of fear!"

We can make it happen, folks; and we are making it happen one step at a time! Yes, it feels like we're climbing Mt. Everest, but we're halfway there! We have already organized ourselves as a strong body of sufferers, we have participated in large numbers in a scientific questionnaire, and now the experts are conferring to draw up a more refined research survey as a result so that we may participate in this one as well.

We have also had participation from experts, particularly from Arun Nagrath, Dr. Detlef Werner, and now from Dr. Robin Lachmann who will soon answer our questions regarding TMAU. Folks, we have only accomplished all this in less than half a year! Our blog only went live on May 26, 2008. And the MSN Body Odor forum was revamped in less time than that, and the anthology has been in the works in even less time. This is only a reflection of the desperation and of the drive we feel to find answers, to find a real treatment plan, and to find a cure.

We need to give ourselves a well-deserved good pat on the back for a job well done, and to give each other a pep talk to keep up the momentum. We also need to extend our hands out to all sufferers to ask for additional assistance in these endeavors. We need everyone's contribution in this quest for a cure, and no one is insignificant here, we can all contribute in one way or another, for we are ALL looking for a cure!

Outstanding job everyone! We're a great people!!!

María

For additional information on the charity corporation being filed in the UK, see A charity corporation is being established in the UK for BO & Halitosis research

And for additional information on the anthology see Tell your BO experience : be a part of an anthology of short stories and poetry

Dr. Detlef Werner's paper in German: Yahoo Trimethylaminuria forum files

Dr. Detlef Werner's paper translated into English: TMAU Hints for a new therapeutic option with Desmopressin - translation into English

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