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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Monday, March 25, 2013

MEBO Research 4th Annual Meetup - Memphis, Tennessee



MEBO RESEARCH 4TH Annual Meetup
at Embassy Suites Memphis, TN
May 17th - 19th, 2013


ALL ARE INVITED!


We are most grateful to Nicole and MEBO’s Director of Public Relations, Glenna, for putting together MEBO Research’s 4th annual meetup (2013) at the,



Embassy Suites Memphis
1022 South Shady Grove Road,
Memphis, Tennessee, 38120, USA
TEL: 1-901-684-1777

The meetup will be held on the weekend of May 17th through May 19th, which will coincide with the city-wide barbecue festival,


MEMPHIS IN MAY
WORLD CHAMPION
BARBECUE COOKING CONTEST 2013


See Tweets, "Memphis in May"


that will be taking place on special locations, including Graceland, Stax Museum of American Soul Music, and boat tours on the

Memphis Riverboat tours including Dinner & Music Cruises for $42/Adult, $30/Child 4-12yrs, $10/2-3 yr old. Ör just a Sightseeing Cruise: $17.00/adult, $10/child 4-12, $5.00/2-3yrs old. This event will allow for an exciting vacation for the whole family as well.



TO BOOK YOUR RESERVATIONS:

OPTION 1: Book it directly online at,

Personalized Group Page - MEBO Annual Conference

Group Name:MEBO Annual Conference
Group Code:MEB
Check-in:17-MAY-2013
Check-out:19-MAY-2013
Hotel Name:Embassy Suites Memphis
Hotel Address:1022 South Shady Grove Road
Memphis, Tennessee
38120
Phone Number:901.684.1777


OPTION 2: Please call the hotel directly at,

901.684.1777

and ask for the MEBO Research rate of $142/night*

for either one King bed or two double beds.



Share a room with someone and cut your cost in half, and each person will still enjoy the complimentary extras below!


This rate is also extended up to three days prior to the 17th and three days after the 19th (May 14th through May 22nd), but only if booked prior to April 26, 2013.

Room rates include :

  • Complimentary daily full breakfast per person,
  • Complimentary nightly 2-hour Manager's Reception, serving free unlimited alcoholic and non-alcoholic beverages and snacks,
  • Complimentary Memphis International Airport shuttle,
  • Free self-parking,
  • All 2-room Memphis hotel suites with refrigerator, coffeemaker and microwave,
  • Located just minutes to Graceland and downtown Memphis.

You owe this wonderful getaway to yourself and your family, so reserve your room now while available during the city-wide barbecue festival! Usually suites with double beds sell out first before suites with single King beds.


*PLEASE MAKE SURE TO BOOK YOUR RESERVATIONS BEFORE THE DEADLINE FOR THE MEBO RATES, WHICH IS ON APRIL 26, 2013. YOU CAN HOLD YOUR RESERVATION WITH A CREDIT CARD, AND YOUR CARD WILL NOT BE CHARGED UNTIL YOU CHECK OUT AFTER YOUR STAY.
NOTE: Travelocity & other travel sites may offer a $3.00 cheaper fare, but it is instant-payment, nonrefundable.

The actual conference part of the meetup will not be as long as usual to allow for more vacation time, though there will be some presentations (yet to be determined), and papers written by experts will be available prior to the short conference to be held Saturday (time to be determined). You are encouraged to read these papers so that you may raise questions and comments during the conference. More information will soon be forthcoming. We usually hold a three to five hour conference on the Saturday of each annual meetup beginning at 12 noon. However, this year, we would like to keep it to not more than 3 hours long (noon to 3:00pm) to allow for more fun time!

Comments on this post are welcome (by clicking on "Post a Comment" below), and tell us what topics you would like to be discussed in the conference part of this meetup.

María


María de la Torre
Founder and Executive Director

  A Public Charity
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)




A EURORDIS and NORD Member Organization

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