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MEBO TMAU urine test

MEBO Research
TMAU Urine Test
United States only
PROGRAM IS PERMANENTLY SUSPENDED AS OF 2 MAY 2017

Click here for
REQUISITION FORM
Incomplete applications
will NOT be processed

SEE UPDATES HERE

1
test
$150 plus
shipping costs
2
tests
$250 plus
shipping costs

TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please.

Test analysis performed in batches of 20 or more

DATE: 2 MAY 2017
Currently on : PROGRAM IS TEMPORARILY SUSPENDED

Samples analyzed since June 2012 :
352
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Saturday, March 1, 2014

US Senate Passes bipartisan Resolution for Rare Disease Day

On February 28, 2014 in U.S. Senator Brown's (D-OH) newsroom press release website, it is announced that a bipartisan resolution led by Senator Sherrod Brown and John Barrasso (R-WY) was passed in Washington, D.C., that would recognize the last day of February as "National Rare Disease Day," "to raise awareness of, and provide support for, the 30 million Americans living with a rare and potentially life-threatening disease or disorder.


Every day 30 million Americans, including too many children, have to live with life-limiting and sometimes life-threatening rare diseases," Brown said. "National Rare Disease Day is an opportunity for Congress to bring attention to these brave Americans, increase awareness about rare diseases, and help us understand the need for advances that can lead to prevention, effective treatments, and cures."

We are most grateful to Senators Brown and Barrasso for showcasing our cause.

We are also most grateful for the fine work done by the National Organization for Rare Disorders (NORD) and EURORDIS, The Voice of Rare Disease Patients in Europe, for representing all its rare disease member organization, including MEBO, and for spearheading the annual Rare Disease Day events around the world. We are very excited and proud to be a part of this movement.

Everyone is encouraged to register in the RareConnect website, Trimethylaminuria (TMAU) Community. Of particular interest is their wealth of information found in their "Learn" section's Documents and Articles (see tabs). RareConnect is a partnership of EURORDIS and NORD in which many sufferers have found it beneficial to participate in. RareConnect has also sponsored the many webinars that our experts have volunteered to do for us, such as,
These webinars are filled with very valuable information for our community, to which we owe kuddos to RareConnect for making it available to us. Please support this movement by registering with RareConnect today.

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)



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