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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, February 28, 2014

Today is Rare Disease Day around the world!

Today is Rare Disease Day!

Watch as the world wakes up to 28 February 2014 and the beginning of Rare Disease Day.
Participants in over 80 countries are holding events for Rare Disease Day. Learn about what is happening around the world, by clicking on the country flags and reading about their events.
There are still ways to get involved in Rare Disease Day and spread awareness about people living with a rare disease and their families.

In 2014, the theme is Care. Learn more about the theme and Join Together for Better Care.
After Rare Disease Day, participants will be posting photos from their events on the country and event pages, which you can also see directly from the home page. Come back to take a look at the celebrations, advocacy events and people around the world building awareness for the cause.

Animation created by NORD, National Organization for Rare Disorders, and shared for all Rare Disease Day supporters around the world to use.



We look forward to the day when Dr. Elizabeth Shephard's research for a therapeutic for TMAU at University College London will be listed in this
Orphan Drugs List.

Find out the latest orphan drug designations and marketing authorisations
1 new marketing authorisation!
Orphan Drugs

A EURORDIS and NORD Member Organization


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