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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Friday, February 28, 2014

Today is Rare Disease Day around the world!


Today is Rare Disease Day!



Watch as the world wakes up to 28 February 2014 and the beginning of Rare Disease Day.
Participants in over 80 countries are holding events for Rare Disease Day. Learn about what is happening around the world, by clicking on the country flags and reading about their events.
There are still ways to get involved in Rare Disease Day and spread awareness about people living with a rare disease and their families.

In 2014, the theme is Care. Learn more about the theme and Join Together for Better Care.
After Rare Disease Day, participants will be posting photos from their events on the country and event pages, which you can also see directly from the home page. Come back to take a look at the celebrations, advocacy events and people around the world building awareness for the cause.

Animation created by NORD, National Organization for Rare Disorders, and shared for all Rare Disease Day supporters around the world to use.

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ORPHAN DRUGS

We look forward to the day when Dr. Elizabeth Shephard's research for a therapeutic for TMAU at University College London will be listed in this
Orphan Drugs List.

Find out the latest orphan drug designations and marketing authorisations
1 new marketing authorisation!
Orphan Drugs




A EURORDIS and NORD Member Organization

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