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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Saturday, October 7, 2017

Dr Stanley Hazen talks briefly about TMA-inhibitor therapy


Dr Stanley Hazen talking to Helio recently.
About his work on TMA-inhibition using small molecules to interfere with the formation of TMA by gut bacteria.

MEBO understands the over-the-counter TMA-interferer product his lab and P&G are working on could be a minimum of 2 years away before getting to market.

The lab has found that certain small molecules can interfere with the enzyme in gut bacteria that alters precursors like choline/carnitine into trimethylamine.

Full Helio article (TMAO)

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A EURORDIS and NORD Member Organization

9 comments:

Anonymous said...

The UK TMAU forum has a post about Dermetel, a DMB solution available for sale on Monday, December 10. This would be about equivalent to what we had hoped
Proctor & Gambel would bring out last year. Would you have any recommendations about taking this supplement? Do we know anything about possible side effects, etc.? Would it be safe for TMAU sufferers to try this? There are a lot of questions to be answered, and I am sure we would all appreciate some guidance on this!

Thanks.

Dec 9, 2017, 6:40:00 PM
Anonymous said...

The link to the DMB site is:

https://dermetel.org/store/dmb-supplement-5-grams.

Dec 9, 2017, 7:11:00 PM
Anonymous said...

Is this legitimate orr scam

Dec 16, 2017, 1:53:00 PM
Anonymous said...

Is this a scam for dmb? Called phone bUT no one answers. Number is for cell phone in Kent washington. Please let us know

Dec 16, 2017, 1:55:00 PM
Anonymous said...

Ordered 12/21/17 still not shipped. Paid 125 plus shipping.. idk

Jan 6, 2018, 1:56:00 AM
blogcontributor2 said...

It seems they are having a problem getting the product through customs or via the courier.
They need to get a special licence as its classed an alcohol and volatile.
Last I heard they were applying for the licence and hoped to get it on the 5th Jan.
Are you outside USA ?

Jan 6, 2018, 2:02:00 AM
Ánonimo said...

Como puedo conseguir este tratamiento está bien intentar con este tratamiento tengo un pequeño de 9 años y tiene cancer necesita muchos más procedimientos y yo me siento amarrada sin poder hacer nada solo esperando que mi esposo y mi familia hagan todo por mí por las burlas el rechazo que recibo vivo en colombia como conseguirlo por favor ayundenme

Jan 6, 2018, 7:12:00 PM
Anonymous said...

LA organization no a podido obtener El permiso para transportar El producto, que see llama Dmb. LA organization see llama Dermatel I see puede ordenar El product por Dermatel.org o por Amazom.com en estatdos unidos.

Jan 8, 2018, 11:30:00 PM
Anonymous said...

In the USA. As of today Jan 8 no word from Dermatel.

Jan 8, 2018, 11:33:00 PM
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