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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, June 14, 2008

Charcoal supplements for body odor, part II of III

Please note : This example is used to show how effective charcoal can be in the gut, as it is still used by Emergency Rooms today for acute poisoning cases. Under constant supervision of the medical staff, it is used to adsorb (and make unabsorbable) the poisons left in their gut. It is not recommended that a similar treatment be used without medical supervision.

Activated charcoal itself is a fine, black powder that is odorless, tasteless, and nontoxic. It is used in very high doses in hospital Emergency Rooms with most drug overdose cases, and is often given after gastric lavage—the technique often called the stomach pump. Gastric lavage is only effective immediately after swallowing a toxic substance (within about one-half hour) and does not reach beyond the stomach as activated charcoal does. It works by adsorbing (soaking up) chemicals, thus reducing their toxicity (poisonous nature), through the entire length of the GI tract (stomach and small and large intestines), and is estimated to reduce up to 60% of poisonous substances being adsorbed. This article says that activated charcoal is a very safe decontaminant in the gastrointestinal (GI) tract (stomach and intestines). It is considered to be the most effective agent available, and is used after a person swallows or adsorbs almost any toxic drug or chemical. [1]

The National Institute of Health, Office of Rare Diseases, in their recommendations for the treatment of trimethylaminuria, prescribe activated charcoal taken at a dose of 750mg twice daily for ten days, with a note stating, "Individuals should follow the treatment advice of their health care provider and should not attempt to self-administer these treatment approaches. Medications and supplements can have unintended interactions, and dietary restrictions can result in nutritional deficits." [2]

Related links:
2. General treatment advice on TMAU by the NIH Rare Diseases website, including charcoal advice use

Part 3 : click here

Translated into Spanish
by Natalia


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