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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, July 29, 2008

Interview with author, Kathy Watson (author name: Carry Wilson)

During my interview with Kathy this evening, I fell in love with the strong spirit I found in her that fights to survive and to not surrender to the oppression that weighs upon her and brings her down repeatedly, only for her to bravely stand up again. “My depression is 100% caused my odor, and for years my doctors kept denying that I had it, and living in the ghetto, my friends were mean to me about my odor,” she said. “I thought I was going crazy. I had four major breakdowns and was hospitalized with depression. The hospital was a relief for me because it took me away from the outside world where I had to live with this odor.”

Kathy began to go to the library regularly to seek answers to her condition. The librarian taught her to use the computer, and 7 years later, she found information about TMAU. This was the turning point in her life. Although she is still on her road to recovery from the heavy burden of depression, as there still is no cure for TMAU, one only has to look back to where she began her struggle with her malady to see what a fighter she is and what inner strength and determined will power she has had throughout these years. Not only has she accomplished to use a computer well and to understand the medical terms, but also to write her own book in her effort to face her ordeal against all odds.

Kathy, we look forward to getting to know you personally and to share our thoughts and experiences with you as well, so that we can all grow together as a family who understands and cares for each other like no one else could. I couldn’t think of a better person to inaugurate our Women’s Free Conference Calls.


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