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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Tuesday, July 29, 2008

Interview with author, Kathy Watson (author name: Carry Wilson)

During my interview with Kathy this evening, I fell in love with the strong spirit I found in her that fights to survive and to not surrender to the oppression that weighs upon her and brings her down repeatedly, only for her to bravely stand up again. “My depression is 100% caused my odor, and for years my doctors kept denying that I had it, and living in the ghetto, my friends were mean to me about my odor,” she said. “I thought I was going crazy. I had four major breakdowns and was hospitalized with depression. The hospital was a relief for me because it took me away from the outside world where I had to live with this odor.”

Kathy began to go to the library regularly to seek answers to her condition. The librarian taught her to use the computer, and 7 years later, she found information about TMAU. This was the turning point in her life. Although she is still on her road to recovery from the heavy burden of depression, as there still is no cure for TMAU, one only has to look back to where she began her struggle with her malady to see what a fighter she is and what inner strength and determined will power she has had throughout these years. Not only has she accomplished to use a computer well and to understand the medical terms, but also to write her own book in her effort to face her ordeal against all odds.

Kathy, we look forward to getting to know you personally and to share our thoughts and experiences with you as well, so that we can all grow together as a family who understands and cares for each other like no one else could. I couldn’t think of a better person to inaugurate our Women’s Free Conference Calls.


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