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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, July 29, 2008

Women's Conference Call Inauguration Tomorrow : Wednesday 30th July

It is with great pleasure that I write this post today. Tomorrow on the 2nd month anniversary of this blog, and approximately three months after the inauguration of Cabel’s General Conference Calls, Tisha will inaugurate the bi-weekly Women’s Conference Calls, which will serve as a place of refuge where women with similar physical and emotional challenges can come together to share how each faces these challenges. Here we will explore our womanhood as single women, women in relationships, in motherhood, and women in the workforce. Kathy Watson (a.k.a. Carry Wilson, author of her autobiography, The Foul Body Odor that Almost Killed Me), will be our inaugurating honored guest. All women are welcome to join us!


Women's Free Phone Conference: Wednesday 8pm EST
Next call: July 30th at 8:00 pm EST
GUEST SPEAKER : Carry Wilson

For USA-based: (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier

Record number of callers : 70+
If privacy is a concern, code your phone to PRIVATE mode
This phoneline can be used anytime to talk to other sufferers

Click below to read my taster interview with Kathy/Carry

During my interview with Kathy this evening, I fell in love with the strong spirit I found in her that fights to survive and to not surrender to the oppression that weighs upon her and brings her down repeatedly, only for her to bravely stand up again. “My depression is 100% caused my odor, and for years my doctors kept denying that I had it, and living in the ghetto, my friends were mean to me about my odor,” she said. “I thought I was going crazy. I had four major breakdowns and was hospitalized with depression. The hospital was a relief for me because it took me away from the outside world where I had to live with this odor.”

Even though Kathy was a high school drop out, and couldn’t read well, she began to go to the library regularly to seek answers to her condition. The librarian taught her to use the computer, and 7 years later, she found information about TMAU. This was the turning point in her life. Although Kathy is still on her road to recovery from the heavy burden of depression, as there still is no cure for TMAU, one only has to look back to where she began her struggle with her malady to see what a fighter she is and what inner strength and determined will power she has had throughout these years. Not only has she accomplished learning to read, to use a computer well, but also to write her own book in her effort to face her ordeal against all odds.

Kathy, we look forward to getting to know you personally and to share our thoughts and experiences with you as well, so that we can all grow together as a family who understands and cares for each other like no one else could. I couldn’t think of a better person to inaugurate our Women’s Free Conference Calls.

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