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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, July 22, 2008


The scientific questionnaire Arun has been telling us about is now avaliable for sufferers to participate in. This questionnaire was originally devised and modified by Arun Nagrath in consultation with a consultant in metabolic medicine/TMAU and with the assistance of others in the internet body odor/halitosis community, with the intent of using the results to promote funding and research to find a better understanding of metabolic body odor and halitosis.

The greater the participation from sufferers, the more valid the results will be so please make sure you take time to fill it out as accurately as possible. It is the sincere hope of this endeavor to move experts to become inspired and dedicated to the exploration this very devastating problem that substantially limits one or more major life activities in a significant percentage of the human population around the world, including the ability to maintain employment and productive social function

We especially thank the gentleman from Arun's meet-up of the 14th and 15th of June, 2008, who worked so diligently in creating the questionnaire database, and to one of our CureZone members who coordinated the creation of this project, and for Arun who inspired and guided us through this process. Their contributions have been invaluable. Our most sincere gratitude goes out to them for their outstanding fine work in bringing this scientific tool to fruition.

You can access the questionnaire at:


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