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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Saturday, September 13, 2008

Day 1 at the London meetup. Day 2 is Sunday 12 noon

Today was the first day of our Thames Festival Meet-up, the first one I've ever attended. There were a total of 8 people today, and the rest are coming tomorrow. Of the 8 people, only 2 had attended the previous meet-ups and it was the first one for the other 6 people. Of the 8 people, already 2 have been diagnosed with TMAU.

The most beautiful part of this meet is how quickly we bypassed the common initial encounter protocol and immediately bonded as if so much unspoken communication had already taken place. We quickly transcended to a closeness that allowed us to feel peaceful and relaxed as if we had been experiencing our "battles" together, and now share a deep solidarity in our quest for healing.

Again, each and every one of us let out a sigh of relief knowing that not one of us smelled any of the others! Could it be that our happy, peaceful state somehow decreased our odor just as stress increases odor? Maybe much more could be said for emotional triggers in addition to hormonal and dietary triggers. If fact, we did not get even negative reactions from the thousands of people in the festival. Just this fact alone made our experience so very special and only added to the spiritual healing we all experienced in these few hours. We couldn't help but think of all the other sufferers not present, and wished the same comfort we found here to each and every one of them.

1 comments:

Anonymous said...

Don't you think that it's strange nobody smelled anyone? It's starting to make me think that maybe your mental state can really trigger odor.

May 19, 2012, 5:37:00 PM
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