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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Saturday, September 13, 2008

Day 1 at the London meetup. Day 2 is Sunday 12 noon

Today was the first day of our Thames Festival Meet-up, the first one I've ever attended. There were a total of 8 people today, and the rest are coming tomorrow. Of the 8 people, only 2 had attended the previous meet-ups and it was the first one for the other 6 people. Of the 8 people, already 2 have been diagnosed with TMAU.

The most beautiful part of this meet is how quickly we bypassed the common initial encounter protocol and immediately bonded as if so much unspoken communication had already taken place. We quickly transcended to a closeness that allowed us to feel peaceful and relaxed as if we had been experiencing our "battles" together, and now share a deep solidarity in our quest for healing.

Again, each and every one of us let out a sigh of relief knowing that not one of us smelled any of the others! Could it be that our happy, peaceful state somehow decreased our odor just as stress increases odor? Maybe much more could be said for emotional triggers in addition to hormonal and dietary triggers. If fact, we did not get even negative reactions from the thousands of people in the festival. Just this fact alone made our experience so very special and only added to the spiritual healing we all experienced in these few hours. We couldn't help but think of all the other sufferers not present, and wished the same comfort we found here to each and every one of them.


Anonymous said...

Don't you think that it's strange nobody smelled anyone? It's starting to make me think that maybe your mental state can really trigger odor.

May 19, 2012, 5:37:00 PM
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