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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, September 30, 2008

Leaky gut (intestinal permeability) urine test can be bought online for around $90

Leaky gut is an unknown factor in bloodborne/metabolic body odor/halitosis. For those who wish to test, it is reasonably cheap and straightforward to test (it is a urine test), and sellers of the test are available online.

There are 2 types of the test, the PEG test, and the lactulose-mannitol test (the most common type of test). There are a few reputable test companies who do the test. An example (and best known) is Genova Diagnostics Intestinal Permeability test. Example sellers below sell Genovas 'intestinal permeability' test. $90 $90

If you do the test, it would be great if you could let the body odor/halitosis community know in some way, so that we may be able to see patterns and define a typical profile of a sufferer. Also, it would be helpful to learn of any procedure problems. Perhaps it is cheaper elsewhere.

While seemingly largely ignored by mainstream medicine, some researchers are looking at possible connections with illnesses. The best known being a study that found that only alcoholics with leaky gut developed cirrhosis

The First paper on leaky gut was 1984. Since then there has been little but gathering interest. There have been theories with regards a connection in crohns disease, and this month with heart failure

When they say leaky 'gut, It seems they mean leaky small intestine. The cells lining the small intestine are supposed to use glutamine for growth, whereas the colon cells are thought to grow on butyrate.

Note: These tests also test for malabsorption (i.e. not enough absorption). you can have both malabsorption and leaky gut. Leaky gut is due to gaps between the cells, whereas absorption is direct through the cell and may be interfered with for some reason.


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Jul 20, 2013, 9:59:00 PM
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