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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Tuesday, September 30, 2008

Leaky gut (intestinal permeability) urine test can be bought online for around $90

Leaky gut is an unknown factor in bloodborne/metabolic body odor/halitosis. For those who wish to test, it is reasonably cheap and straightforward to test (it is a urine test), and sellers of the test are available online.

There are 2 types of the test, the PEG test, and the lactulose-mannitol test (the most common type of test). There are a few reputable test companies who do the test. An example (and best known) is Genova Diagnostics Intestinal Permeability test. Example sellers below sell Genovas 'intestinal permeability' test.

http://www.integrativepsychiatry.net/genova_diagnostics.html $90
http://www.crohns.net/page/C/PROD/GSD2100 $90

If you do the test, it would be great if you could let the body odor/halitosis community know in some way, so that we may be able to see patterns and define a typical profile of a sufferer. Also, it would be helpful to learn of any procedure problems. Perhaps it is cheaper elsewhere.

While seemingly largely ignored by mainstream medicine, some researchers are looking at possible connections with illnesses. The best known being a study that found that only alcoholics with leaky gut developed cirrhosis

The First paper on leaky gut was 1984. Since then there has been little but gathering interest. There have been theories with regards a connection in crohns disease, and this month with heart failure

When they say leaky 'gut, It seems they mean leaky small intestine. The cells lining the small intestine are supposed to use glutamine for growth, whereas the colon cells are thought to grow on butyrate.

Note: These tests also test for malabsorption (i.e. not enough absorption). you can have both malabsorption and leaky gut. Leaky gut is due to gaps between the cells, whereas absorption is direct through the cell and may be interfered with for some reason.

1 comments:

Anonymous said...

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Jul 20, 2013, 9:59:00 PM
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