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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Thursday, September 4, 2008

UK Trimethylaminuria testing options update

Latest on testing for TMAU without a Dr in the UK :

It looks like another supplier may enable UK residents (or international, but USA testing is much cheaper), to do the urine test for around £160 + a £35 charge. We will keep you updated. The £35 is their 'brokers' charge (basically if you can't get access to the test direct as medichecks now allow, you need a 'broker' instead)

The Sheffield Childrens Hospital test lab who does the TMAU urine test normally charges around £124 (last years quoted price, which if done through the NHS presumably is paid for by your Drs surgery). If you can satisfy them that you are testing under a Drs approval, that sort of price should be possible. It's a case of getting some sort of referral note/request form from a Dr (perhaps they have some sort of requisition form). Basically you need a 'broker'.

The Sheffield hospital also does the FMO3 DNA test. Last known price was £280 for NHS patients (presumably the Drs surgery can pay for that) or £392 for private/international patients.

Hopefully with some investigation we will find the easiest way to enable doing this test for free or the cheapest price if direct testing is the preferred option. Any feedback/leads are welcome.

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