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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, September 4, 2008

self hypnosis mp3 reviews

Obviously any form of 'support' or 'encouragement' with a bloodborne odor problem would be welcome, although sadly, aside from the welcome empathy and help of other sufferers, many of us will have neither due to the ironic 'common rules' of the problem (for example often no 'loved ones' or doctors can smell the sufferer). So if need be, the 'reprogramming' aspect could come from artificial sources, such as the many self-hypnosis mp3s now available on the net. You could download any MP3 to an MP3 player and use it whenever you want. If it's good enough for pampered world-class athletes (complete with psychological motivators, coaches, fans etc) it should be good enough for people with metabolic smells that get nothing but negativity and no help.

There are so many to choose from it is hard to make decisions on where to buy (both in terms of choice and of quality). Someday you will likely be able to hear a sample of each hypnosis MP3 before you buy them, but for now this seems to be an infrequent courtesy. If any of you use self-hypnosis MP3s, you could write a review sometime, although the main point of the post is to make people aware of the option.


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