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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, October 23, 2008

Anthology Update 2 from Richard

Richard sends us the following update on the anthology project specifying the deadline to submit your work to him.

Our publishing company for the anthology is Whitmore Publishing ( It has been approved by the Better Business Bureau as being a genuine, trustworthy publishing house. (Not every publishing company or magazine online is legitimate.) As they do not take paper, the entire manuscript will be emailed to them. I have informed them as to what the book will consist of and the approximate time it will be submitted, which is late December or early January.

I don't want anyone to believe that getting this book published will be easy. If it is not accepted by this publisher, we will go on to the next one. I have been in contact in the past with an author named Mike Flak who can give us some help should we need it. We will continually do the best we can to get this anthology in print. It is too important for us to ever give up on!

If you would like to contribute in some way to this book, please see the first anthology update on the Poetry/Stories board, dated October 19. I need to have your work completed and sent to me ( no later than November 21, 2008, which is the Friday before Thanksgiving week. It will be too late for me to accept anything after that date.

Also, the following members should click on the MESSAGES&REPLIES discussion, message on the Poetry/Stories board and please read the message especially intended for you regarding your participation in this project:

Stephanie C


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