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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :
https://meboresearch.co.uk/index.php/living-with-tmau-lwtmau-study/

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Thursday, October 9, 2008

A charity corporation is being established in the UK for BO & Halitosis research

One of the most important outcome of this blog and of the Thames Festival 2008 Meet-up in London is the initiation of the establishment process of an international charity corporation in the United Kingdom, whose purpose is to pursue funding for research in the various causes, treatments, and cure of body odor and halitosis, particularly metabolic body odors and halitosis. Arun Nagrath will be the scientist spearheading the research effort of this corporation, as a world-wide fundraising effort will be launched by members of this charity corporation for such a purpose.

As I stated in my introductory letter in this blog, dated April 10, 2008,

The function of this blog is multifaceted as it serves as a channel between experts and sufferers to promote awareness and funding, and to achieve a good solution to enable sufferers to help themselves... The third important objective of this effort is to establish a world body odor & halitosis research center… Through this blog sufferers of various body odor forums, as well as other sufferers, can come together in larger numbers to provide the scientific community with data for research, surveys and questionnaires.
As a result of sufferers uniting through this blog to support research, over 100 have come forward to participate in Arun’s scientific questionnaire in a period of only 2 ½ months since it went live on July 22, 2008. Arun will now compile and analyze the results in consultation with a specialist in metabolic medicine, and will draw up a more refined scientific study. As this process continues and the corporation is well established, an international concerted fundraising effort will be launch to assist Arun in acquiring the necessary means to pursue serious research.

Arun has shared with us some of his ideas on the causes of body odor in some of the posts he’s done in this blog, such as, Arun speaks to us about his past studies and current scientific study of BO and Aruns opinion on body odor and halitosis. As I mentioned in my post, Arun’s intro video to the Thames Festival 2008 Meet-up,

He is not only a scientist who seeks answers to our physical condition, but he is also totally dedicated to the emotional and social healing process of all sufferers. By doing so, he stands out from amongst the rest to be our leader, our teacher, our confidant, and our guide, because each of us knows that he sees the real human being within each of us.

It is precisely for this reason that we believe that Arun is the right person to research for a cure for us. He is one of us, he is dedicated to us as we are to him, and together we will find an answer to this malady.

If you have not yet participated in Arun’s scientific questionnaire, http://www.tmau.shareaflat.net/, please do so before 11:59p.m. Eastern Standard Time Friday, October 10, 2008, as it will no longer be available after that time.

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