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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, October 11, 2008

Much to discuss in our Conference Call this Sunday, October 12th

Join us in our Conference Call this Sunday, October 12th at 2:00p.m./EST (7:00p.m./UK time). Amongst other topics, Arun and I will be available to discuss our efforts to establish an International Charity Corporation based in the UK for our community. The primary function of this charity is to pursue research grants from various Foundations around the world.

We will discuss the need to wrap up the anthology that we would like to use as a fundraising tool, as it is our powerful testimony that depicts the life-devestating effects of uncontrollable body odor in the school, work, and social environment. So if you plan to write an essay or poem that you would like to include in this anthology, please do so as soon as possible. Richard and Stephanie, please join us in this call to let us know what we need to do to help you put this all together. If you need help with this effort, the conference call would be a great place to coordinate this.

Ben will try to join us so that we can meet him and ask him questions about his extended scientific knowledge of body odor.

We can also discuss Linda from Norway’s Cookbook and the measures we can take to support her efforts.

There is plenty for us to talk about as a community, so please do join us. See the details in the center sidebar of this blog.


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