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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Sunday, October 12, 2008

What a great Conference Call we had today!

We had a very interesting conference call today that included callers from across the US, such as Tina from California, all the people Cabel mentions below, and Arun from the UK. And for the very first time ever, Kristen called us all the way from Australia!

Daisy and I are planning to contact the media from South Florida to tell our story, and Arun explained a great deal of scientific information to us. Kristen and I told of our plans to set up charity corporations in the UK and in Australia, and Kristen and Cabel are going to do a soundtrack together, even though Cabel is in Indiana and Kristen in Australia. Thank God for modern technology!

Below is Cabel's synopsis of this very special conference call as only Cabel can tell it, always adding a very special dimension to his storytelling interpretation.

Hey everybody,We had an awesome conference call today. It was definitely full of emotion and togetherness. It's awesome that we are coming together from all over the world! If you guys missed the call you missed Daisy bringing that Cuban fire! Haha...Also Arun went in depth with a lot of issues that I've never heard him talk about. Maria talked about the new corporation and talked in depth about the UK meet up. Then our Australian Idol Kristen came on the call and talked about her life and singing. Then of course we had Tisha and Trisha and Faith and Pauline and Greta from Texas and a whole bunch of people I am forgetting right now. Anyway, this was probably one of the best calls Ive been ok in a long time. I heard some people open up like I have not heard them do before. It was awesome. A big thank you to everyone who called in...definitely made my week!

Cabel

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