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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, October 12, 2008

What a great Conference Call we had today!

We had a very interesting conference call today that included callers from across the US, such as Tina from California, all the people Cabel mentions below, and Arun from the UK. And for the very first time ever, Kristen called us all the way from Australia!

Daisy and I are planning to contact the media from South Florida to tell our story, and Arun explained a great deal of scientific information to us. Kristen and I told of our plans to set up charity corporations in the UK and in Australia, and Kristen and Cabel are going to do a soundtrack together, even though Cabel is in Indiana and Kristen in Australia. Thank God for modern technology!

Below is Cabel's synopsis of this very special conference call as only Cabel can tell it, always adding a very special dimension to his storytelling interpretation.

Hey everybody,We had an awesome conference call today. It was definitely full of emotion and togetherness. It's awesome that we are coming together from all over the world! If you guys missed the call you missed Daisy bringing that Cuban fire! Haha...Also Arun went in depth with a lot of issues that I've never heard him talk about. Maria talked about the new corporation and talked in depth about the UK meet up. Then our Australian Idol Kristen came on the call and talked about her life and singing. Then of course we had Tisha and Trisha and Faith and Pauline and Greta from Texas and a whole bunch of people I am forgetting right now. Anyway, this was probably one of the best calls Ive been ok in a long time. I heard some people open up like I have not heard them do before. It was awesome. A big thank you to everyone who called in...definitely made my week!



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