Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Scroll down and select country
MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, October 27, 2008

We had two Conference Calls 5 hours/each this weekend!


This Sunday, we had 52 callers participating in our conference call, which started at 2:00p.m. Not everyone stayed from beginning to end, as callers joined in and left throughout the call, while some talked and others just listened.

We talked about many things such as the organization plans of having our next Meet-up at Miami Beach this coming Spring 2009, as well as the progress of our anthology. As usual, we also exchanged information on the odor management protocols that have helped some sufferers.

We discussed the pros and cons of the various options we have regarding which site to move our MSN forum as a result of the announcement that The MSN Groups service will close in February 2009. This will probably be an ongoing discussion for the next four months, and in the end, our Manager, Arun will make the final determination.

One of the callers told her story of her recent experience with having a colonic irrigation, as opposed to using the lactulose recommended by the National Institute of Health in the TMAU Management protocol. See the posts in this blog entitled, Colonic irrigation : A demonstration video and An odor-reducing management protocol discussed in the Thames Festival meet-up.

The benefits of doing a Colonic irrigation as opposed to taking a laxative is that with a colonics, one doesn’t experience the normal increased of odor lasting a couple of days produced with the first lactulose treatment to cleanse the gut. Since the lactulose cleansing is a slower process, it tends to increase the odor for a day or two; whereas the Colonic irrigation cleanses the colon very well in only about 45 minutes without producing this undesirable increase in odor. In addition, follow-up lactulose cleansings should not produce the significant increase in odor, since the gut had previously been cleansed, as long as a good diet regimen is maintained.

An impromptu conference call was also held the previous day, on Saturday at 3:30p.m., with only a 15 minute notice, and Ben, Cabel, Sharon, Arun, and Jess were able to attend. Ben was able to join for the first time, and he stayed on the call for three hours, even though he says he doesn’t usually like talking too much on the phone. The call was still going at 8:30p.m. As Arun posted later in MSN, “It's always a pleasure chatting to my family. I long ago discarded the notion that the term family has to have a biological link (brother, sister, mother, father). You guys are all my family. Well actually, I believe it will eventually come out that we DO in fact have a biological link (we share a defective metabolic pathway). But more than this, we understand each other's lives and feel compassion for each other. I am so proud to be a part of this group!”

0 comments:

Post a Comment