Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out


March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Friday, November 14, 2008

Arkansas Children's Hospital will now allow TMAU urine testing direct for $126 (via a Doctor)

Arkansas Children's Hospital
is no longer performing the test for TMA, as per the
Supervisor, Clinical La/Metabolic Genetics, AKC
September 2013

The Arkansas Children’s Hospital Lab is now accepting adult and children's urine samples for TMAU testing sent directly to them, as opposed to having to send them first to the Mayo Clinic. This must be collected through your Physician or a lab referred by a Physician. Any Physician can order this test by calling this number for additional instructions, at:

Metabolic Genetics Lab
Arkansas Children's Hospital

Certain insurance companies, like BC-BS, have paid for the test which currently costs $126.35. You may want to check with your insurance company to see if they will pay or how to appeal if denied. If denied PLEASE appeal - for everyone’s sake. The majority of appeals are usually approved, and by appealing, we are showing the demand for this test.

Possibly a way to get tested via Arkansas is to take information about TMAU to your MD, including the request papers from the ACH website.

Arkansas Childrens Hospital webpage with requisition form for TMAU urine test
Arkansas Childrens Hospital PDF document Requisition Form and information on their TMAU urine test

Additional information will be forthcoming soon.

As mentioned in our post, Your MD can do the TMAU urine test via the Mayo Clinic test service, the Mayo Clinic is accepting urine samples for TMAU testing only with your Physician’s written order for the Mnemonic Test WILD105 for the cost of $144.20. They then forward the sample to the Arkansas Children’s Hospital Lab where it is analised. The instructions of how to prepare the specimen for temperature requirements and transport method is also included in this post.

If you should happen to be near a Mayo Clinic facility and wish to use their services as well, you may also do so with a Physician referral. You would need to call them in advance and make the necessary arrangements for testing and billing at 800-533-1710 or 507-266-5700, as noted in the post.


Post a Comment