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MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER : 10% OFF
Join/Watch the weekly
TMAU UP Podcasts

Videos : TMAU stories

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

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MEBO US PAYPAL FOR TRINZYME

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Thursday, November 13, 2008

email to NIH (ORD) and Wellcome Trust about a 3rd Trimethylaminuria workshop

An email was sent to the National Institutes of Health in the US and The Wellcome Trust in the UK about hosting a 3rd Trimethylaminuria conference. The NIH email was forwarded to GARD. An email has also been sent to ORD. There has been no reply as of yet. The NIH jointly funded the first conference/workshop (along with the Wellcome Trust), and presumably the 2nd also. At first it looked as if it would be a biannual meeting (the September 20 2001 scheduled conference was presumably postponed until 2002). Possibly there's a need for it to be an annual conference


Hello,

there have been 2 trimethylaminuria conferences. One in 1999, the 2nd in 2002.

It's estimated about 1% could be at risk of trimethylaminuria, and the definition seems to have loosened over the years. Also, there are distinct differences in diagnosis testing by groups of testers in different countries, probably since there are so few testers. And with the maturing of the internet, sufferers are now surfacing in much greater numbers.

It would seem a good time for a 3rd conference.

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