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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Monday, November 24, 2008

The Anthology 1st draft - and a bit about self-publishing

The first draft of the body odor and halitosis anthology that has been overseen by Richard is now complete, and viewable to the community as a document on theMSN body odor forum, and also on the bloodborne body odor and halitosis wiki. The next step is self-publishing.

Thank you Richard, for taking on and diligently working on the project. It was only made possible through you. And thank you to everyone who bravely contributed. You are helping everyone by breaking down the wall of shame that encircles this condition, and has kept us so hidden from medical awareness. We are all in your debt.


On the subject of self-publishing:

When any book is written about body odor and/or halitosis, especially bloodborne/metabolic/systemic types, the whole community benefits from the awareness promoted by the brave author(s).

Anyone wishing to write a book can nowadays self-publish, and there are many self-publishing companies on the internet. Also there is no need now to publish a 'real' book. It can be in PDF format only... an e-book.

This post is written only as a starting point, to promote discussion, since it's not something we know anything about. Any feedback is welcome.

A brief look on google, 2 publishers that turned up were booksurge.com and createspace.com, which seem to be associated with amazon.

https://www.createspace.com/
http://www.booksurge.com/

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