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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, November 24, 2008

The Anthology 1st draft - and a bit about self-publishing

The first draft of the body odor and halitosis anthology that has been overseen by Richard is now complete, and viewable to the community as a document on theMSN body odor forum, and also on the bloodborne body odor and halitosis wiki. The next step is self-publishing.

Thank you Richard, for taking on and diligently working on the project. It was only made possible through you. And thank you to everyone who bravely contributed. You are helping everyone by breaking down the wall of shame that encircles this condition, and has kept us so hidden from medical awareness. We are all in your debt.

On the subject of self-publishing:

When any book is written about body odor and/or halitosis, especially bloodborne/metabolic/systemic types, the whole community benefits from the awareness promoted by the brave author(s).

Anyone wishing to write a book can nowadays self-publish, and there are many self-publishing companies on the internet. Also there is no need now to publish a 'real' book. It can be in PDF format only... an e-book.

This post is written only as a starting point, to promote discussion, since it's not something we know anything about. Any feedback is welcome.

A brief look on google, 2 publishers that turned up were and, which seem to be associated with amazon.


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