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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, November 29, 2008

Florida Keys side trip for the Miami 2009 Meet-Up?

Jess and I would love to invite you come meet with us and all the other South Floridians to our South Miami Beach Meet-Up on Saturday and Sunday, May 2nd and 3rd, 2009, and to our road-trip through the Florida Keys from Miami to Key West and back on Wednesday and Thursday, May 6th and 7th.

The Florida Keys are connected by bridges, the longest being 7 miles over the water. One of the wonders of this trip is that as you go south, the Atlantic Ocean is to your right, and the Gulf of Mexico is to your left, so you can see the sun rise and the sun set over the water if you stayed long enough. You see mangroves and smaller outer keys that are not connected by bridges and that you can only get to by boat.

The Florida Keys have a culture all it's own. It's very laid-back, away from mainstream USA, and definitely beats to a slower pace. Key West has a mixture of people from various walks of life, who share a unique lifestyle that blends in with the architecture of the Historic Section of the Key, with its quaint restaurants and shops.

I would have loved to have taken many more pictures of Key West, but I had to leave earlier than expected.

I hope I did it justice, though I know I came short.



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