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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Saturday, November 29, 2008

Florida Keys side trip for the Miami 2009 Meet-Up?



Jess and I would love to invite you come meet with us and all the other South Floridians to our South Miami Beach Meet-Up on Saturday and Sunday, May 2nd and 3rd, 2009, and to our road-trip through the Florida Keys from Miami to Key West and back on Wednesday and Thursday, May 6th and 7th.

The Florida Keys are connected by bridges, the longest being 7 miles over the water. One of the wonders of this trip is that as you go south, the Atlantic Ocean is to your right, and the Gulf of Mexico is to your left, so you can see the sun rise and the sun set over the water if you stayed long enough. You see mangroves and smaller outer keys that are not connected by bridges and that you can only get to by boat.

The Florida Keys have a culture all it's own. It's very laid-back, away from mainstream USA, and definitely beats to a slower pace. Key West has a mixture of people from various walks of life, who share a unique lifestyle that blends in with the architecture of the Historic Section of the Key, with its quaint restaurants and shops.

I would have loved to have taken many more pictures of Key West, but I had to leave earlier than expected.

I hope I did it justice, though I know I came short.

Enjoy!

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