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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, November 8, 2008

General Conference Call this Sunday 2pm EST

General Conference Call for all sufferers
Sunday 2pm EST

It's time for the fortnightly General Conference Call, to which everyone is welcome. The last call had 52 callers. There is no need to talk in the call, you can just listen in. Here's the testimony of a happy caller last time (posted with her permission):


You are so right in your posts regarding the ideology of family. The bond that you guys have established over the phone is so very real. And the group is so welcoming to any and all newcomers. I really reveled in how you all were quick to welcome others to the group. By the way, I will be less noisy when I come on the next time. I forget that with that ear piece, people can still hear me while I'm directing the kids, etc. What you do for the group, no one can put a price on that. The reassurance and the comfort that you offer makes all the difference in how someone can feel after speaking with you, and the group as a whole. I almost want to cry when I think of the benefit that the group offers for anyone suffering with Body Odor. My wish is that any one who is suffering alone could find the board and patch themselves in, so that they no longer have to feel isolated and detached. You -Arun, Cabel, Maria, Tisha, and many others are so totally awesome for all that you do on this board. I am near tears. I am reading them, even when I don't always respond. Kudos to all of you!
And in this MSN Groups post, Arun the main manager, pays tribute to Cabel, who set up the Conference Calls earlier this year:
Cabel dude,
You really are a hero for setting up these conferences. You know, this sort of thing has been tried on at least one other site I know, but never got anywhere despite there being a huge number of members on that site. So I guess that says a lot about us guys!

I sometimes used to wonder if there would be long quiet moments when people would have to think of what to say in the conferences. But what I have found is the opposite! It is sometimes difficult to get a word in edge ways due to the sheer volume of traffic! Infact, I think we will be forced to looking at doing additional conferences on Saturdays.

Cabel, I don't think we ever really thanked you for your work in supporting other members. So I would like to stop and say a little thankyou. You inject much thought in what you say and I like your pholosophical discussions. Like Maria, you are an integral part of this site and I can't imagine any future site without you in a similar role.
phone-in details below (and in the sidebar):

Arranged by the leaders at the MSN Body Odor support forum
Note: can also be used anytime for unscheduled group chats

Free USA-based phone conferences (if you have a long distance call plan. Otherwise you will be charged as a long-distance call)

For USA-based : (712) 432 1620 then type the access code on your phone keypad: 391629#
Non USA : prefix above with 001 but check to see if it is free with your supplier

General Conferences: normally every other Sundays 2pm EST.
Next call : November 9th at 2pm EST

Record number of callers : 70+
Callers last time: 52
If privacy is a concern, code your phone to PRIVATE mode
This phoneline can be used anytime to talk to other sufferers
You don't need to talk. You can just listen


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