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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, November 7, 2008

Message from Arun Nagrath about the future of the MSN Body Odor Support Group

Intro: Arun is the manager of the MSN Body Odor Support Group, to which this blog is closely affiliated. MSN is closing down it's MSN Groups messageboards in February, and Arun is looking to find the best alternative. The default alternative is 'MSN Multiply', which Arun has already started setting up. If anyone has any advice or alternative suggestions for a 'group home', feel free to contact him or post it on the MSN Group board. Especially if you have technical knowledge about websites, including any unforseen implications (such as default settings that are inappropriate on private sites and damage confidence).

Can you think of alternatives for a community 'home' ? Facebook ? Good Forum format ?
Guys, as you know, a few of the managers here (including myself) are looking at possible contenders for a future site when MSN closes this group down in February 2009. I just wanted to let you know that I am on top of the situation. I have contacted MSN and today they made me Manager of the MSN site so that I can begin the process of migrating this site to one that MSN also run called MULTIPLY.

All the contents of MSN BodyOdorSupport will get copied over to the new MULTIPLY site by early next week so that we can evaluate the site to see if we like it. If we like it then that's great, problem solved! If we don't like it, well we don't need to persue it. Our MSN site will still be here until February and we can backup the files somewhere so they aren't lost forever. MSN are only making a COPY of our site onto Multiply, the MSN site won't get deleted immediately at the same time. That will happen in February.

Since I am migrating the site I will be the Administrator of the new site (if we decide to go with MULTIPLY). I plan to retain ALL the managers but also to include Sharon from the Yahoo Trimethylaminuria Group since she has strengths in that department. So, the Managers will be Maria, Cabel, Ben and Sharon. Sharon will help me with some Administrator activities in the first month (copying files, creating tabs, adding videos etc) then will revert to Manager status. We also plan to appoint one or two Assistant Managers but that will be decided after a Management Board Meeting tagged to a phone conference.

Within the next few days you will get invitations to the new Multiply site! Please join and take your time checking it out. The message board on MULTIPLY is not called message board it is called Blogs or Notes (2 message boards). If there are any IT people or Techies amongst you please let us know and help us with our questions if you can.

We don't have to use one site for everything but can have tabs or links which take us to another Group site where we have a database or even to other members personal blogs/websites. So everything can be interlinked anyway.


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