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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, November 5, 2008

Preview of things to come: South Beach 2009 Meet-up

Welcome to Miami
Bienvenidos a Miami!

Jess and I met this past Thursday at South Miami Beach to discuss the initial preparations for our South Beach 2009 Meet-up. We enjoyed each other's company over lunch at a sidewalk café on this lovely autumn day. As we contently enjoyed the cool ocean breeze, we discussed how to best accommodate our very dear friends from this very special community. Jess has great organizational ideas, and we decided to take pictures and a video so that you can all get an idea of what to expect.

By the time we got around to taking the video, clouds were forming as if preparing to bring upon us the typical afternoon showers as the weather turns from the warmth of summer to the cool of winter. You will see these clouds in this video, and unfortunately, you will also hear the wind blow as well.

Cabel blessed this video with his inspirational song entitled, An Embrace Eternal. He also gave us another song for the slideshow presentation that we are in the process of preparing of all the pictures we took that day of South Beach, and others I had previously taken of Surfside, Bal Harbour, and Haulover Beaches. Here is Cabel’s explanation of his song selections,

The slower song with the acoustic guitar is something I recorded in my apartment several months back. The other is a song my old band recorded in daughter even has a cameo in this song (I recorded her one night when she was a baby trying to say her name, 'Siddha'...but it came out like Sid da da da da).

I called the acoustic song An Embrace Eternal

The more up-tempo song was called Vicarious Shorelines. We used to play it live all of the time.

Thank you Jess and Cabel.


Click 'read more' to see 'the soundtrack version'


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