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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, November 20, 2008

Thanks to all who attended yesterday's the Women's Conference Call

In our Women’s Conference Call last night, we discussed our new scientific study on the correlation between the menstrual cycle and metabolic malodor. We mentioned how hopefully this study will empower each woman to gain greater control over her life by knowing when her intermittent odor will kick in, if indeed it is related to ovulation and menstruation, and thus she can plan her diet and social functions accordingly. By these intermittent episodes becoming more predictable, the woman’s generalized anxiety level can be reduced as she acquires greater personal control in her life.

We also touched upon how other non-sex hormones can affect our level of body odor, including epinephrine (also called adrenaline) that controls the "fight and flight" response and possibly producing malodor. This hormone is secreted when we perceive real or imagined danger as well as stress, or even positive exciting emotions.

Another topic of discussion was the recent announcements of the TMAU urine testing in the Arkansas Children’s Hospital for the very reasonable price of only $126, which some insurance companies are already covering.

We also relayed the information that Vanita’s interview with Dr. Lachman took places on Thursday, November 13th, and Vanita will soon be posted Dr. Lachmann's answers in the Renewal Newsletter and in this blog.

I would like to thank all the women who attended this conference call, including those that spoke and those that listened. Please join us in the next General Conference Call to be held this Saturday (as opposed to Sunday), November 22nd at 2:00pm/EST. See details in the center sidebar notice entitled, ‘Regular FREE (long distance call plan) General and Women-only Phone Conferences.'

would you like the women's call to be weekly ?


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