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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Monday, November 17, 2008

update on email request to DNA labs about Trimethylaminuria DNA test

Regarding the email sent to DNA labs as mentioned in this post, so far we have had 3 replies. One negative, one unclear (but presumably not so hopeful), and one quite positive.

Thank you for the suggestion and information. We will seriously consider adding this test (as a DNA test).

Molecular Genetics Laboratory
Department of Pathology
All Children's Hospital
801 Sixth St South
St Petersburg, FL 33701
It's difficult to know what to do next. for instance a 'campaign' may discourage them.

There was also a less understandable reply from UCLA
Thanks for writing. We are well aware of this condition and have seen patients affected with it in our UCLA Medical Genetics Clinic. Regarding testing, at this point our Orphan Disease Laboratory is only set up to test for known familial mutations; we cannot do full-gene analysis. Requisition forms are available on our website for any of your contacts who wish to be tested.

Divisions of Medical Genetics
and Molecular Pathology
Departments of Path. & Lab. Medicine,
Pediatrics, and Human Genetics
UCLA School of Medicine
Los Angeles, CA 90095-1732
Anyone who finds out any further information about this subject, we would be most grateful to hear about it.


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