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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Monday, November 17, 2008

update on email request to DNA labs about Trimethylaminuria DNA test

Regarding the email sent to DNA labs as mentioned in this post, so far we have had 3 replies. One negative, one unclear (but presumably not so hopeful), and one quite positive.

Thank you for the suggestion and information. We will seriously consider adding this test (as a DNA test).

Molecular Genetics Laboratory
Department of Pathology
All Children's Hospital
801 Sixth St South
St Petersburg, FL 33701
It's difficult to know what to do next. for instance a 'campaign' may discourage them.

There was also a less understandable reply from UCLA
Thanks for writing. We are well aware of this condition and have seen patients affected with it in our UCLA Medical Genetics Clinic. Regarding testing, at this point our Orphan Disease Laboratory is only set up to test for known familial mutations; we cannot do full-gene analysis. Requisition forms are available on our website for any of your contacts who wish to be tested.

_______________________________
Divisions of Medical Genetics
and Molecular Pathology
Departments of Path. & Lab. Medicine,
Pediatrics, and Human Genetics
UCLA School of Medicine
Los Angeles, CA 90095-1732
Anyone who finds out any further information about this subject, we would be most grateful to hear about it.

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