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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Saturday, November 1, 2008

Video of Dr Katz demonstrating his Therabreath products using a halimeter

This is a video from Dr Katz' collection of videos on his site. He is well known in the halitosis community for his Therabreath products and his quick demonstrations with the 'Halimeter', which seems to be a gas-sensing portable mass spectrometer designed to detect volatile sulfides in particular. However, on the halitosis forums, it's unclear how people feel about his products, so no comment can be made. He doesn't seem to explore the possibility of halitosis being metabolic/systemic/bloodborne, and the smell actually coming through the lungs.

In theory, both his products and his proof of diagnosis seem sensible. His products seem to be oxidizing/oxygenating products, which is probably the main way the mouth stops smelly anaerobic bacteria dominating the mouth flora. The cell enzymes in the mouth probably oxidize these compounds to neutralize them. In practice, each person will need to research themselves, and make up their own mind. Of course if the halitosis is bloodborne, it's not seemingly likely to have much impact

Of particular interest, in relation to bloodborne odors, is his 'halimeter'. This is the sort of test equipment that should naturally be used in odor detection, and you would think every dental lab should have one for halitosis cases. How good or useful the halimeter in particular is, is not possible to conclude. There are one or two research papers in pubmed but overwhelming evidence is not available.


Halimeter website List of some dentists with a halimeter
Dr Katz Therabreath blog
Dr Katz video library

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