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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, December 5, 2008

A word from Dr. Richard S. Lord, PhD: of Metametrix

Richard S. Lord, PhD, director of the Department of Science and Education at Metametrix Clinical Laboratory, has helpfully posted a reply to the post on his 'GIfx' presentation video posted in this blog recently. At the moment (until someone investigates), it seems likely gut dysbiosis may be a factor (or the factor) in some metabolic body odor cases, especially the fecal/gas/sewage/garbage/rotten egg/etc type that seems the most common type. Metametrix specialise in gut dysbiosis testing, and other metabolic types of testing. Thank you from the community Dr Lord, for taking the time to post.

Metametrix GIfx test will likely give society the best definition of 'dysbiosis(es)' yet, and the most up-to-date understanding of gut ecology so far, although the test has not been available that long, so it is very early days. They detect the state of the gut ecology using DNA detection of microbes in stool samples. This will likely become the standard way to test stool samples for microbiota evaluation. The old fashioned way, still probably commonly used, meant having to 'culture' microbes from stool samples in the lab. The advantages of DNA testing are explained on the GIfx site

Having noticed this new posting of the presentation, I can add that a publication is now being prepared to report our finding of distinct groupings of predominant genera among the patient stool specimens that have been examined. Specific genera tend to appear at high levels as one of three clusters. When any one of the clusters dominates the fecal bacteria population, higher incidences of opportunistic bacteria are found. This finding represents another step in the unfolding story of what specific patterns constitute states of dysbiosis.

From routine clinical evaluations of patients, we are amassing a very large database of results using the DNA-based methods to analyze stool specimens. Doctors who use the testing are learning how to evaluate the significance of each abnormality (such as the presence of a parasite of pathogen) in relation to the total picture, including the balance of predominant anaerobic bacteria.
This is an exciting time for scientist and clinicians who have long sought to understand how the billions of microbes that live within us contribute to human health and disease. Stay tuned as the story continues to unfold.

Richard Lord


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