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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, January 11, 2009

$15 halitosis breath-tester at the 2009 CES Vegas conference

At the lower end of the breath analysis market, the sensors are normally MEMS Sensors (micro electro-mechanical systems). The cheap alcohol breathalyzers being examples. Some companies have also moved into the halitosis market, and have MEMs sensors that try to detect (usually) one or more Volatile Sulfur Compounds. There has been web mention of even Siemens putting a breath-checker in a mobile phone (but this was a few years back and no phone seems to exist yet). For many reasons the sensitivity and specifity of these halitosis checkers are currently questionable since we don't know much about them, but at least they are mostly very cheap.

One bad breath tester is on display at the Las Vegas CES conference. The Kiss-me-meter by Seju Engineering. Apparently $15 in Walgreens. There seems to be a few of these cheap-end testers on sale now. Dr Mel Rosenberg, the co-founder of ISBOR has one on sale called OK2Kiss by his company 'Innoscent'.

Perhaps you get what you pay for with these sensors. At the moment, scepticism seems a sensible approach. The Oral Chroma by Abilit seems to also be a MEMS sensor, but is expensive and used by professionals in a clinical setting. Hopefully the makers will find there is such a demand for such a product that the market will become as sophisticated as the alcohol breathalyzer market. Perhaps someday we can convince a maker to develop one that tests the breath for trimethylamine or other smelly compounds. Possibly for many metabolic body odor sufferers, sulfides will be part of the spectrum of smells, so in theory the bad-breath testers should overlap with the manufacturers target audience in that respect.

Seju-Engineering page on the CES 2009 site
Engadget article abut the kiss-me-meter
Seju Engineering Kiss-me-meter page
Siemens page about one of their top MEMS inventors
International Society for Breath Odor Research
Oral Chroma by Abilit


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