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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, January 31, 2009

Farewell Tribute to MSN Body Odor Forum Times

As the month of February approaches, we can only sit and wait for our former MSN Body Odor Forum site to shut down. We now have our new forum,, that we call home created with much love by Kristen and Matt.

Nonetheless, it is with a great deal of warm sentiment that I recall those special days in which we poured our hearts out to each other and lifted each other up out of the darkness that engulfed our lives. With each key stroke we shared our experiences, our trials and errors, our despair and our hopes with each other in an effort to help each other. By doing so, we became as close, or even closer with each other than most do with their own families. We began to share our pictures by posting them more and more in this site, and some later migrated them to ‘Multiply’.

As a tribute to this precious moment in time that we’ve shared as a community, I made a video of these pictures, paintings, and collages. I wish I could have posted this video in our new forum, but that aspect of our forum has not yet been developed. So, it is posted in my blog, and I do hope you enjoy strolling down memory lane with me.

We have built so much together, let’s keep the flame burning. We’ve only just begun the healing process, and there is still so much more to do!

I do hope you enjoy this video…


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