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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Saturday, January 31, 2009

Farewell Tribute to MSN Body Odor Forum Times


As the month of February approaches, we can only sit and wait for our former MSN Body Odor Forum site to shut down. We now have our new forum, http://www.bodyodorsupport.com/, that we call home created with much love by Kristen and Matt.

Nonetheless, it is with a great deal of warm sentiment that I recall those special days in which we poured our hearts out to each other and lifted each other up out of the darkness that engulfed our lives. With each key stroke we shared our experiences, our trials and errors, our despair and our hopes with each other in an effort to help each other. By doing so, we became as close, or even closer with each other than most do with their own families. We began to share our pictures by posting them more and more in this site, and some later migrated them to ‘Multiply’.

As a tribute to this precious moment in time that we’ve shared as a community, I made a video of these pictures, paintings, and collages. I wish I could have posted this video in our new forum, but that aspect of our forum has not yet been developed. So, it is posted in my blog, and I do hope you enjoy strolling down memory lane with me.

We have built so much together, let’s keep the flame burning. We’ve only just begun the healing process, and there is still so much more to do!

I do hope you enjoy this video…

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