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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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MEBO survey for Dr Hazen click here
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Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

MEBO Research Clinical Trials

Thursday, January 1, 2009

Goodbye 2008, Hello 2009












We have had a very rich year full of hope and unity. We have grown very close to each other at many levels, as fellow-sufferers who strive to heal ourselves and each other physically, emotionally, and socially. We are people of all ages, races, nationalities, and walks of life, yet we are drawn together from all around the world! What is this magnetism that calls to us to get together, to get to see each other in person in meet-ups, and to talk to each other in conference calls and personal phone calls in addition to our forum posts?

There is something bigger and stronger than each one of us individually at play here that is leading us on the right path to find answers to our condition and to a cure. We are a very diverse community held together at our innermost level by a common experience. We have discovered in each other a part of ourselves. Individually, we have always felt we were unique and alone in the world, and now we discover that we not only share so much in common with each other, but that we also complement each other with our uniqueness, our individual talents and perspectives that we bring forth from our uniqueness and our background.

If we have reached these heights as a group in less than a year, God only knows what's in store for us in 2009, and what we can accomplish together; the sky is the limit! Let's reach for the stars!!!

María


GOALS FOR 2009:

*fundraising to organize group testing for research
*establishment of Metabolic Body Odor Charity
*new forum site for MSN
*more interviews with experts to post in our blog
*webinars with experts
*more meet-ups throughout the world
*support research efforts in Australia, UK, US, and other parts of the world...

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