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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, January 1, 2009

Goodbye 2008, Hello 2009

We have had a very rich year full of hope and unity. We have grown very close to each other at many levels, as fellow-sufferers who strive to heal ourselves and each other physically, emotionally, and socially. We are people of all ages, races, nationalities, and walks of life, yet we are drawn together from all around the world! What is this magnetism that calls to us to get together, to get to see each other in person in meet-ups, and to talk to each other in conference calls and personal phone calls in addition to our forum posts?

There is something bigger and stronger than each one of us individually at play here that is leading us on the right path to find answers to our condition and to a cure. We are a very diverse community held together at our innermost level by a common experience. We have discovered in each other a part of ourselves. Individually, we have always felt we were unique and alone in the world, and now we discover that we not only share so much in common with each other, but that we also complement each other with our uniqueness, our individual talents and perspectives that we bring forth from our uniqueness and our background.

If we have reached these heights as a group in less than a year, God only knows what's in store for us in 2009, and what we can accomplish together; the sky is the limit! Let's reach for the stars!!!



*fundraising to organize group testing for research
*establishment of Metabolic Body Odor Charity
*new forum site for MSN
*more interviews with experts to post in our blog
*webinars with experts
*more meet-ups throughout the world
*support research efforts in Australia, UK, US, and other parts of the world...


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