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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :
https://meboresearch.co.uk/index.php/living-with-tmau-lwtmau-study/

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Friday, January 2, 2009

10 minute halicheck at Breezecare Breath Clinic

halitosis breezecare clinicThe Breezecare Breath Clinic in London appears in google ads for halitosis searches. Breezecare's first clinic was in Australia, founded by Dr Geoffrey Speiser. They seem to be focusing on halitosis sufferers and basing their help on halicheck 'breath testing'. In principle this seems the most sensible approach, but 2 potential obstacles would seem to be :

1. Most sufferers don't seem to be able to 'smell on demand'. It seems transient (otherwise, you would presume any dentist would tell them)

2. In the health-system, treatment is not based on a money back guarantee.

The good thing about this clinic is that it is offering an option of a 10-minute breath check (by a consultant rather than the Dentist). This seems a great 'cheap' choice for professional diagnosis. It keeps costs as low as possible, and the halicheck is at least a 'real test' (i.e. you get a bit of paper). However, the confidence in the halicheck can't be judged currently, and also since many sufferers can't smell on demand, there's a good chance they won't be smelling on the day. The clinic itself does seem to be trying it's best in the halitosis arena. Like most/all, they are likely unaware of metabolic halitosis.

That said, anyone taking up this option is suggested to keep expectations low, except perhaps, if you have traditional 'classic' permanent localized halitosis. But it is posted in good faith so that the option is known about.

It would be interesting to know of any results. An email has been sent asking about the price.


Breezecare blog
News video featuring Dr Speiser of Breezecare
Yahoo7 haltitosis news video featuring Dr Speiser of Breezecare and related text link
Oral Chroma 'Halicheck' (what Dr Speiser uses)
Halimeter (Alternative breath-test machine)
wikipedia : Halimeter

Breezecare clinics : Sydney, Melbourne, London, Kota Kinabalu

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