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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, January 2, 2009

10 minute halicheck at Breezecare Breath Clinic

halitosis breezecare clinicThe Breezecare Breath Clinic in London appears in google ads for halitosis searches. Breezecare's first clinic was in Australia, founded by Dr Geoffrey Speiser. They seem to be focusing on halitosis sufferers and basing their help on halicheck 'breath testing'. In principle this seems the most sensible approach, but 2 potential obstacles would seem to be :

1. Most sufferers don't seem to be able to 'smell on demand'. It seems transient (otherwise, you would presume any dentist would tell them)

2. In the health-system, treatment is not based on a money back guarantee.

The good thing about this clinic is that it is offering an option of a 10-minute breath check (by a consultant rather than the Dentist). This seems a great 'cheap' choice for professional diagnosis. It keeps costs as low as possible, and the halicheck is at least a 'real test' (i.e. you get a bit of paper). However, the confidence in the halicheck can't be judged currently, and also since many sufferers can't smell on demand, there's a good chance they won't be smelling on the day. The clinic itself does seem to be trying it's best in the halitosis arena. Like most/all, they are likely unaware of metabolic halitosis.

That said, anyone taking up this option is suggested to keep expectations low, except perhaps, if you have traditional 'classic' permanent localized halitosis. But it is posted in good faith so that the option is known about.

It would be interesting to know of any results. An email has been sent asking about the price.

Breezecare blog
News video featuring Dr Speiser of Breezecare
Yahoo7 haltitosis news video featuring Dr Speiser of Breezecare and related text link
Oral Chroma 'Halicheck' (what Dr Speiser uses)
Halimeter (Alternative breath-test machine)
wikipedia : Halimeter

Breezecare clinics : Sydney, Melbourne, London, Kota Kinabalu


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