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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Saturday, January 24, 2009

Hair testing

When metabolic body odors and metabolic halitosis finally get attention from the health system, stage one will be trying to define what the problem is through testing. The technology is probably readily available in labs across the countries (say, at metabolism units in hospitals), it's a case of getting them to test for the metabolites (in the way that a very few test for trimethylamine).

"Drug and drug metabolite(s) are incorporated into the hair matrix from the bloodstream following drug use. Hair drug testing detects drugs that are embedded in the hair"

Labcorp site
Once that stage is reached, it's a question of how to test the patient. There are a few various ways. The most obvious would be testing for volatile organic compounds in urine, blood or breath. Another new(ish) way of testing is from hair samples.

This post is about hair testing. Currently drug and alcohol detection labs seem to use the various ways to detect drug/alcohol and are the most obvious labs on google searches of "hair testing". It's unclear if the health-system 'advisors' back their claims.

Taking the labs claims as accurate without question, the advantage of hair testing seems to be that it can detect compounds accumulated over days/weeks. Unfortunately no-one tests for likely 'smelly' compounds currently. A 'metabolic body odor' profiling test. Some check mineral status. Hair testing would be no use as 'spot tests'. For trimethylaminuria, first thoughts are that it would maybe be able to detect trimethylamine, but not trimethylamine-oxide.

Overall, the concept sounds useful but it's unknown how accurate the method of testing is currently regarded.

random links :
wikipedia : hair testing
Labcorp hair-testing lab for drug/alcohol detection
Pubmed 2001 paper on hair testing
Letter of reply from a lab re the Pubmed paper
Society of Hair Testing


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