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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, January 6, 2009

ISBOR bi-annual breath malodor conference in Dortmund April 26-30

Note : The secretary said the public can attend this, but it is quite costly to enter the conference hall. See their website for details (and perhaps email to confirm)

The International Society for Breath Odor Research (ISBOR) is holding their 8th bi-annual conference in Dortmund on April 26-30. This year it will be a joint conference with the International Association for Breath Research (IABR).

ISBOR focuses on oral malodor, whereas IABR focuses on all aspects of 'breath analysis'.

It is of great interest to both bloodborne body odor and halitosis, as well as 'local' halitosis, because they focus their research on 'breathometers' that detect the compounds in breath. Perhaps someday there will be body odor (& halitosis) conferences too (with the emphasis on metabolic body odors)

The International Society of Breath Odor Research was created in Leuven Belgium in 1995 at the occasion of the second International Workshop on Oral Malodor. Indeed, inspired by the first workshop organized in Israel in 1993 by Mel Rosenberg, a second conference was organized by Daniel van Steenberghe and Mel Rosenberg. It gathered 140 scientists and clinicians from 16 countries representing everything from ENT to dentistry and from gastroenterology to periodontology. Since 1995, seven ISBOR conferences have taken place throughout the world including Herzliya 1993, Leuven 1995, Vancouver 1997, Los Angeles 1999, Tokyo 2001, London 2004, and Chicago 2007. The eighth ISBOR international conference will be in Dortmund, Germany in April 2009.

The aim of ISBOR, as defined in the constitution, seeks to "promote research and dissemination of research findings in all aspects related to breath odor." Until two decades ago, the knowledge of this very relevant social and health issue was limited, and its teaching anecdotal, ISBOR has been able to raise the awareness of and interest in the implications of breath odor for general health care. ISBOR represents a unique multidisciplinary gathering of people convinced that cross-fertilization is beneficial for the advancement of science and patient care.


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