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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
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Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Wednesday, January 21, 2009

Monitoring Metabolic Status and Disease Recognition

When reading the section of this book entitled, ‘Messages in Body Odor’ written by the Institute of Medicine of the [US] National Academies, it brings to mind that it might be precisely the analysis of our odor that would lead the experts to diagnose the causes of our body odor condition. The section, ‘Disease Recognition’ discusses how dogs and mice’s sense of smell can detect metabolic diseases such as diabetes, scurvy and gout.

This book also discusses two studies that investigate the ability of humans to communicate emotions, or psychological state, through body odor. It also points out how the use of body odor emits chemical signals that can be used to recognize the individual identity of other members of the same species.

Throughout history physicians have used body odor to diagnose metabolic diseases (e.g., diabetes, scurvy, and gout) and infectious diseases (e.g., smallpox, typhoid, and yellow fever) (see Penn and Potts, 1998a). There are also anecdotal account of dogs’ abilities to detect human skin cancers before overt symptoms of the disease were present (Church and Williams, 2001). These observations need to be confirmed with rigorous experimental study.

Nevertheless, female mice could discriminate between parasitized male and healthy males (Kavaliers and Colwell, 1992) and showed less attract5ion to the odor of male mice infected with intestinal parasites than they did to healty controls (Kavaliers and Colwell, 1995)…

Yamazaki and colleagues (2002) studied the ability of mice to discriminate the urine odor of other mice experiementally infected with mouse mammary tumor virus (MMTV), a B-type retrovirus that is tightly linked to immune responses… Monitoring Metabolic Status By Institute of Medicine (U.S.). Committee on Metabolic Monitoring for Military Field Applications, Institute of Medicine


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