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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, February 8, 2009

Join us on our Conference Call today

It is now only up to each of us to pick up the ball that has been thrown in our hands and to run with it.Please join Glenna, Sharon, and me on today's conference call. We have much to discuss, particularly our new forum founded and designed by Arun and created by Matt and Kristen. We want to hear from you. Give us your feedback on what you like about the forum and what changes you would like to take place to make it even better for us.

I would also like to discuss the new limited by guarantee company that I have just created for each and every one of us. The main objective of this non-profit organization is to promote scientific and medical research into the causes and treatment of all body odor conditions, particularly of metabolic, systemic, and or blood-borne conditions or disorders that produce localized or generalized body odor and or halitosis with the objective of finding a cure. I would like to discuss with you how we can work together to promote this mission. Please be prepared to share your creative ideas and to volunteer to help bring them to fruition. We have power in numbers. We will be effective in this endeavor only in as much as each of us participates.

As usual, the conference calls are an open forum so that anyone can introduce their own topic of discussion. Let's focus our efforts into making the year 2009 an even better year than 2008. In 2008, we joined together inspired to tell the world our story in our anthology. All this work would have been in vain if we don't use it now to obtain these objectives. The wherewithal is in our hands with our new private forum and our non-profit organization to more effectively reach out to benefactors and experts and ask for answers. It is now only up to each of us to pick up the ball that has been thrown in our hands and to run with it.

Hope to see you all at our call.



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