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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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NORD Member Organization
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Tuesday, March 31, 2009

Analysis of odor-management products intended for hunting


We know that animals have a more keen sense of smell than humans, and there is a market of products targeting hunters who wish to ‘mask’ their scent in order to get as close as possible to their prey without being detected.

This post neither endorses or discredits the benefits of these products, but only wish to present them to body odor sufferers with as thorough a description of their ingredients as available to us. This post will focus on the products on sale on the website. It would be interesting to see if the concentration of the active ingredients in any of these products is strong enough for any type of uncontrollably strong body odor, and particularly a metabolic body odor.

It would be beneficial to the BO community if anyone who does try any of these products write a comment about their experience by clicking on the ‘Comment’ icon at the bottom of this post, and letting us know if it is potent enough to remove an uncontrollably strong body odor.
Robinson Outdoors almost single-handedly invented the category of scent elimination in the hunting industry back in 1985 with the development of Scent Shield ®. This was the very first product of its kind, intended to prevent deer and other big game from smelling human odor given off by hunters.

Since that introduction years ago, Robinson Outdoors has consistently led the way in scent eliminating innovation. New products were developed to help hunters get clean and stay scent-free. Products like Scent Shield® Clothes Wash and Body Soap were not just fragrance- free formulas; they contain ingredients that prevent the formation of odor in the first place.

These are some of the Scent Shield® products with a brief description of their ingredients. Anyone wishing to try these products is encouraged to write the manufacturer for additional information if concerned.

Carbon Blast $8.99 (16 and 32 ounces spray bottles)
Carbon Blast™ is one of the most revolutionary spray-on products ever developed for the elimination of human scent. Carbon Blast™ utilizes the incredible adsorption power of activated carbon. Carbon Blast™ chemically neutralizes and adsorbs human odor & other odors on hunting clothing, boots, caps, tree stands, fabric hunting blinds and related equipment, keeping it scent-free.

White Lightning™
Powered by a naturally occurring carbon-like compound, White Lightning™ is the newest innovation from the worldwide leader in scent elimination. Its ground breaking dual-action formula* chemically neutralizes and adsorbs odors, enabling hunters to get incredibly close to their quarry without being detected. White Lightning™ is recommended for boots, clothing and equipment, and is incredibly effective wet or dry. Available in 12 and NEW 22 ounce bottles.

TI4™ Titanium ($15.99)
Utilizing the incredible power of Titanium
• Even works on more difficult odors
ammonia, gas and other VOC’s (volatile organic compound), sulfides, smoke.
• Always on – works until the material is eventually washed or scraped away.
After it is applied and the moisture evaporates, a residual of Titanium Dioxide remains.
• Non-toxic, environmentally friendly Titanium Dioxide produces Hydroxyl radicals, which are powerful oxidizing agents that react with the organics found in odors – reducing them to harmless, odorless compounds.
• Retains these properties even after washing.

NEW Revolutionary Quad-Action Scent Eliminator
1. Prevents odor from forming in the first place - NO Gas, NO Odor
2. Adsorbs human and other alarming odors you may encounter
3. Neutralizes human odor on contact and well after it is dry
4. Oxidizes tougher odors by breaking them down

Body Shield™ Deodorant Pill
• Eliminates odor internally, utilizing Chlorophyllin Copper Complex.
• High potency Parsley and Alfalfa powder concentrate* helps control mouth odors.
• Safe internal deodorant reduces human waste odors.

*NOTE: Although this may contain Chlorophillin Copper Complex, it may not be recommended to persons on a low choline diet.
* 100 grams of dried parsley contains 97.00 mg of choline, and
*100 grams of Alfalfa seeds (not powder) have a total of 14mg of choline


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