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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

MEBO Research Clinical Trials

Monday, March 30, 2009

TMAU story on Discovery Health : Mystery Diagnosis, The boy who stopped walking

Thanks again to Cheryl, who again has boldly allowed her trimethylaminuria story to be told to the media, with the beneficiaries being all metabolic body odor and haltiosis sufferers. She truly is a brave pioneering soul.

Cheryl also founded the charity research fund for TMAU at NORD. The 'donate online' instructions are unclear as to how you donate to TMAU research in particular, although it's likely if mentioned that it will go to TMAU. This needs to be clarified.

The program on TMAU was part of the Mystery Diagnosis series

channel: Discovery Health
series : Mystery Diagnosis
episode: The boy who stopped walking
Obviously it must be the second half of the episode. Discovery Health say that previous episodes can be bought on Itunes, though presumably this is only the audio. The program includes comment from Dr Fennessey of the University of Colorado Denver Health Sciences Center. He could be regarded as instigator of trimethylamine urine testing in the USA. His lab is one of the few in the USA, and probably tests the vast majority of samples (90%+ ?)

Thanks again to Cheryl, brave pioneer.


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