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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, March 7, 2009

Join us on our Conference Call tomorrow

I would like to invite everyone to join us in our bi-weekly conference call to be held this Sunday, March 8th at 2:00p.m./DST. Remember that tonight we set the clock one hour ahead for DST beginning at 2:00a.m. on Sunday in the US except in Hawaii, American Samoa, Guam, Puerto Rico, the Virgin Islands and the state of Arizona (with the exception of the Navajo Indian Reservation, which does observe DST).

mebo body odorWe can talk about research, the types of tests some people have already done, what recommendations they got and by whom regarding their testing, what kind of testing and research you would like to see in the future, and what you would like to see our non-profit organization, MeBO Research aim for in terms of fundrasing and research goals.

Please do join me so that we can all share as a strong and united community toward finding research, diagnoses, treatment, and ultimately a cure.

"BO/BB ends when we are physically together!"
Here is a post written by Cabel expressing how healing it is for sufferers to get together in meet-ups and conference calls. If you’ve never participated before, I strongly encourage it. Here’s Cabel:
BO/BB Ends Only In Death?
One time I read a post that echoed a thought that no doubt many of us have had on our darkest days...

"this BO/BB of mine will end only in death"

I would like to tell all of you a secret. There are only a few of us in this community who know this secret. But for all those who don't know, there is another way that BO/BB ends:

It ends when we are in each other's presence.

Let me just repeat that so it is clear: BO/BB ends when we are physically together!

It ENDS when we are physically together, either we cannot detect it on each other (this is in most cases) or if we do faintly detect it, we have nothing but understanding and compassion for the person (this is what happens in a very few cases).

I know many of you don't attend the conference calls, so you do not yet know of story after story of meetup after meetup where we have experienced this strangely comforting phenomenon.

Fewer yet have met up with each other. But those who have met up can all tell you the same thing. They can testify to this. IT IS REAL, and you are only going to know it's true when you experience it for yourself:

BO/BB ends when we are together. Either the odor itself or the judgement we face. It ends when we are together.

I don't hope for relief in death, I hope for relief in each other...and my hope has been confirmed time after time after time.



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