Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

Labels

March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :
https://forms.gle/vem2TjepKobYZPBu8

current participants : 113 (update 18dec20)

Friday, June 26, 2009

Create your own low-choline recipe on nutritiondata.com

In a recent post on the TMAU Yahoo Forum, A poster has posted a recipe using the nutrition data website, which allows you to calculate the nutrition of the recipe when constructing it, and in the case of TMAU therefore allows you to construct recipes low in choline, which TMAU sufferers are advised to keep low (as well as cruciferous vegetables, which are known to inhibit FMO3 enzyme).

Here is the post, with permission from the poster. Thank you

http://health.groups.yahoo.com/group/Trimethylaminuria/message/2157

People who are new to the Low Choline Diet may find this useful.

I created a recipe listing with nutritional data, for Chicken Fajita which is fairly low in choline (good for your main choline meal for the day / dinner).

http://www.nutritiondata.com/facts/recipe/1096639/2

100g of chicken as indicated is one rather large chicken breast. Peppers, Onion and flour tortillas are all low choline.

I'm not a very good cook, but even I can handle this recipe.

Scroll down to "Vitamins" and you will see Choline ~62mg, which is fairly low.

Best,

- Blue Sky Collector


This is also an opportunity to let people know that they can construct their own recipes on the nutritiondata website in the case of TMAU calculating it, especially for low choline content. By becoming a member, the recipe is then available to all readers of the site. Remembering that cruciferous vegetables are also advised to not be used for TMAU, since they are known to inhibit the FMO enzyme.

Note about the Chicken Fajita recipe : While the recipe technically easily fits the low-choline advice given by TMAU experts (and sounds very tasty), keeping in mind that cruciferous vegatables are also advised to be avoided, at the moment the range of smells that people report smelling of, including fecal/gas/sewage/garbage etc, seems more complicated than just trimethylaminuria. Also the issue of metabolic body odor is almost completely ignored by the medical system, so at this point it is unclear how people with metabolic body odors may metabolize foods such as garlic and onions, for example. People on the forums mention they have bad associations with many foods, such as sugar, sulfury food etc. So while the few experts in trimethylaminuria say that trimethylamine is all that the problem is, at the sufferer end of the spectrum this may not be the case.

0 comments:

Post a Comment