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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, June 26, 2009

Create your own low-choline recipe on

In a recent post on the TMAU Yahoo Forum, A poster has posted a recipe using the nutrition data website, which allows you to calculate the nutrition of the recipe when constructing it, and in the case of TMAU therefore allows you to construct recipes low in choline, which TMAU sufferers are advised to keep low (as well as cruciferous vegetables, which are known to inhibit FMO3 enzyme).

Here is the post, with permission from the poster. Thank you

People who are new to the Low Choline Diet may find this useful.

I created a recipe listing with nutritional data, for Chicken Fajita which is fairly low in choline (good for your main choline meal for the day / dinner).

100g of chicken as indicated is one rather large chicken breast. Peppers, Onion and flour tortillas are all low choline.

I'm not a very good cook, but even I can handle this recipe.

Scroll down to "Vitamins" and you will see Choline ~62mg, which is fairly low.


- Blue Sky Collector

This is also an opportunity to let people know that they can construct their own recipes on the nutritiondata website in the case of TMAU calculating it, especially for low choline content. By becoming a member, the recipe is then available to all readers of the site. Remembering that cruciferous vegetables are also advised to not be used for TMAU, since they are known to inhibit the FMO enzyme.

Note about the Chicken Fajita recipe : While the recipe technically easily fits the low-choline advice given by TMAU experts (and sounds very tasty), keeping in mind that cruciferous vegatables are also advised to be avoided, at the moment the range of smells that people report smelling of, including fecal/gas/sewage/garbage etc, seems more complicated than just trimethylaminuria. Also the issue of metabolic body odor is almost completely ignored by the medical system, so at this point it is unclear how people with metabolic body odors may metabolize foods such as garlic and onions, for example. People on the forums mention they have bad associations with many foods, such as sugar, sulfury food etc. So while the few experts in trimethylaminuria say that trimethylamine is all that the problem is, at the sufferer end of the spectrum this may not be the case.


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