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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Saturday, July 11, 2009

Launching MeBO Research

It is with great enthusiasm that I launch our new non-profit organization with the aim to promote research for all types of body odor. Much hard work on my part as well as on the part of many others in this international community has been put forth to bring this opportunity about. This is the opportunity for us sufferers to take the yet-to-be-discovered solutions of our condition into our own hands by creating a testing and research culture ourselves, since the scientific/medical systems will not do it for us.This is the opportunity for us sufferers to take the yet-to-be-discovered solutions of our condition into our own hands by creating a testing and research culture ourselves, since the scientific/medical systems will not do it for us..


You're invited to visit our MeBO Research's website at meboresearch.com where our Mission, Strategies, Short-term goals, and Long-term goals are explained. Also, please visit our interactive 'Have your say' page, and tell us your story. Tell us what you think of the information written on this website, and tell us in which way you would like to participate in helping MeBO grow into a large international organization that seeks results not only for our future but also for the here and now.


Please note that this is only the Beta Phase of the website, and would appreciate you notifying us of any bugs or other corrections that need to be made....tell us in which way you would like to participate in helping MeBO grow into a large international organization that seeks results not only for our future but also for the here and now.

We hope you enjoy it; and we look forward to a strong, enthusiastic, and spirited community participation in all aspects of this effort so that it may indeed be successful in order for each and every one of us to be able to someday walk out of our homes into the world confident that our odor will not interfere with our lives...

María

The alternative is to maintain the status quo, i.e., waiting for the scientific / medical system to come up with significant funding and research for us on its own initiative, which is a very unrealistic possibility.
www.meboresearch.com

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