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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, August 6, 2009

Annual UK Meetup London, Sept 12/13th 2009

Hi guys, I want to invite you to the annual UK Meetup, which has been arranged to coincide with the Thames Festival 2009, which is on that whole weekend.

Outdoors, at the downstairs cafe of the Guoman 'The Tower' Hotel, Tower Bridge, London at 12pm Sat 12th September and 12pm Sun 13th September.
We will meet for coffee outside The Tower Hotel, right next to Tower Bridge, London at 12pm Sat 12th September and 12pm Sun 13th September too. The event lasts the whole day (both days) but members can come and go as they see fit.

This is a social gathering for all people with odour conditions. Advice and stories are shared and is usually a good day out. It is running over two days. Although it is not an official meeting with an agenda, it is an opportunity to meet others and build networks.

London meet-up : are you going ?

I am expecting around 15-20 members in all, including 2 members from the U.S and 2 from Norway. There will of course be discussions about helpful products, testing, diet etc. But it will also be largely a social event to get to know each other so that we can be more effective and for Group support too.

In the evening, you will have a lot of fun. There will be fireworks on the river, floats, carnival, Afro-Carribean steel bands, barbecue, international food stalls etc etc. ENJOY!

For those Group members who are traveling from far, I would suggest you book your hotel ASAP. The one I am recommending is the Travelodge in Tower Bridge, London :-

E-mail address:
Phone (land line): +44 (0) 1375 484 269
Mobile 07753 492 759

N.B. - I will have my mobile with me the whole weekend and will be checking for texts frequently.

(Only dial the 0 digit if calling FROM the U.K, otherwise leave it out). If calling from the U.S or Canada then prefix the above with 011. If calling from elsewhere then prefix with 00

Please Note - Strictly no photography is allowed of other members although you may take photos or videos of me or Maria if strangely inclined!

Arun Nagrath


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