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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, September 19, 2009

Body odor & halitosis conference call on Sunday topics : London meetup and Arun's forthcoming database

You are invited to join Arun (owner of and all the other friendly people on the fortnightly conference phone call tomorrow at 2pm EST.

It will be a chance to hear about the London meetup last week, which saw 20 people attend. It may inspire similar meetups elsewhere. This may be Aruns last call for a while, since he will be working away from his local area for a while.

It is an opportunity for body odor and halitosis sufferers around the world to hear the voices of fellow sufferers, and to share ideas and take comfort.

Arun will no doubt be talking about his new database he is working on, which he sees as a way of providing strong evidence of the amount and types of body odor and halitosis, as well as providing clues in itself. Arun is setting up the database at his own expense. This could be the start of the journey to research and recognition by the medical system.

The conference is USA based, but anyone can phone in. If you are overseas, there are ways of making cheap international calls, such as using 'prefix number' phone companies, even if you are with your national phone company. Calls from UK to USA can be done for around 0.5p a minute if you look around.

Arun is also looking for other ways to host the conference calls, such as on skype or yahoo chat. If anyone knows of an internet way to the conference calls free, Arun would be delighted to hear, so that callers around the globe can join the family discussion. Skype's website says only 6 can attend a conference at one time, but others have said they have attended such calls with more present. If anyone has any tech knowledge, they could contact Arun about it by any means (e.g. on the call, by email etc).

Anyone can phone up and just listen in. You do not need to talk or introduce yourself. When you phone-in, there is a tone the others hear to let them know someone has joined, but you can stay silent.


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