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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

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Blog Archive

UK residents survey : Prof Shephard/MEBO (until 31/1/21) click to visit survey
click to Read more/less

Prof Elizabeth Shephard is conducting a TMAU fact-finding survey for UK RESIDENTS. She plans to use it to raise awareness with decision-makers, such as perhaps MPs. It closes 31 Jan 21.

who is the survey intended for ?
UK residents who identify with TMAU

Living with TMAU study

We invite you to participate in a research project entitled ‘Living with TMAU’.

click to visit survey

survey full url :

Participation in the project will involve completion of a short questionnaire, which aims to capture the experiences of those living with the condition. There are two questionnaires.

For individuals with TMAU over the age of 18

For a parent or guardian of a child with TMAU.

The results from the questionnaires will be compiled to produce a report that will be available for you to use, for example, to lobby your MP. The findings will be used to reach out to policy makers in the UK to have TMAU recognised as an invisible disability and to make people aware of what it is like to live with the disorder. The report will be made available on the MEBO, UK website.

To complete either questionnaire you must be over 18 and resident in the UK. The questionnaire responses are anonymous and no personal identifiers will be collected.

The questionnaire closes 11:59 pm (GMT) Sunday 31st January 2021.

MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Saturday, September 19, 2009

Body odor & halitosis conference call on Sunday topics : London meetup and Arun's forthcoming database

You are invited to join Arun (owner of and all the other friendly people on the fortnightly conference phone call tomorrow at 2pm EST.

It will be a chance to hear about the London meetup last week, which saw 20 people attend. It may inspire similar meetups elsewhere. This may be Aruns last call for a while, since he will be working away from his local area for a while.

It is an opportunity for body odor and halitosis sufferers around the world to hear the voices of fellow sufferers, and to share ideas and take comfort.

Arun will no doubt be talking about his new database he is working on, which he sees as a way of providing strong evidence of the amount and types of body odor and halitosis, as well as providing clues in itself. Arun is setting up the database at his own expense. This could be the start of the journey to research and recognition by the medical system.

The conference is USA based, but anyone can phone in. If you are overseas, there are ways of making cheap international calls, such as using 'prefix number' phone companies, even if you are with your national phone company. Calls from UK to USA can be done for around 0.5p a minute if you look around.

Arun is also looking for other ways to host the conference calls, such as on skype or yahoo chat. If anyone knows of an internet way to the conference calls free, Arun would be delighted to hear, so that callers around the globe can join the family discussion. Skype's website says only 6 can attend a conference at one time, but others have said they have attended such calls with more present. If anyone has any tech knowledge, they could contact Arun about it by any means (e.g. on the call, by email etc).

Anyone can phone up and just listen in. You do not need to talk or introduce yourself. When you phone-in, there is a tone the others hear to let them know someone has joined, but you can stay silent.


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