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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, September 12, 2009

Saturday at the Body Odor & Halitosis Meet-Up at Thames Festival 2009

Meeting so many wonderful people in today's Meet-Up at the Thames Festival was indeed a very special event. There were 15 of us, some from Scotland, Nothern England, London, Norway, and USA. A few of us had attended former meet-ups, but for the majority, this was a first-time experience. It never ceases to amaze me that no matter from what country we may come from, we share the same physical and emotional conditions, and social situations. We have all learned from each other and feel so rewarded when all has been said and done. Many live in close proximity to each other, and very special bonds seemed to have been made in just one day.

Many of us realized and appreciate the potetial each of us have to reach out to each other and offer very valuable and much needed support. Posting in the boards brings us together, talking on the conference calls or chat lines brings us closer, but meeting each other creates a bond that may never exist in other social occasions.

Tomorrow will be the next and last day of our meet-up. We will meet at the same place at 12:00 noon, and plan to leave around 3:00p.m. to take a cruise on the Thames. Please do join us, especially if you were unable to attend today.

I hope you enjoy the pictures and videos I've taken of the event. I took so many that I will be posting them slowly but surely during the following weeks ahead.

Thinking of all of you, and hoping you were here!



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