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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, September 13, 2009

Sunday: the final day at the London Meet-up

Hi everyone,

We had another great day at the meetup today.

Some of us passed the Tate Modern museum forecourt and saw the fire garden at sunset, and others of the group had been partying back at the Hilton Hotel until dawn.

We met at the Guoman hotel first, and then had lunch at the Dickens Inn in St. Katharine Docks. There were about 14 people there today, some from yesterday, and some new ; which makes it about 20 people attended over the weekend. The weather was slightly cold, and so we chose to go up to the lounge in the Guoman Hotel, overlooking the River Thames.

Since we were the first there, we were able to sit by the window overlooking the river and the Tower Bridge, and there we had interesting conversations about systemic body odor and halitosis conditions. It was remarkable how many of us seemed to have other similar medical conditions, ranging from digestive problems to skin problems such as dermatitis and eczema. Some in the group had other similar conditions such as allergies, chemical sensitivities, and rheumatoid condition themselves or in their families.

The meetup was once again an enriching and fulfilling experience, and we are so fortunate that it is part of the UK body odor and halitosis calendar.

More info to come when I return to the US.



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